I AM THE BOSS!

The night before last night, the social worker allowed us to stay in a waiting room about 20 feet away from the area our daughter is. The social worker told us this room is rarily used for sleeping and we needed to vacate the room by 0900 am. Yesterday afternoon, I went and talked to the social worker and begged her to let us stay in the room at least the rest of the afternoon because we had a pretty sleepless night (last night). The social worker allowed this but didnt prefer us to sleep in the room overnight. We did it anyhow, but woke up really early and I cleared everything out of the room so it looked like we just showed up early and didnt sleep there. We are having a hard time leaving the hospital. It will get better for us in time.

So, this morning, we woke up and went to visit our daughter after I put everything in the car. When we walked in the room, the nurse asked us if we noticed anything unusual about our daughter. Liz immediately noticed the vent was off of Nayeli and she started to cry. The nurse told us our baby girl had pulled her breathing tube out a while before we came in. As mentioned in a recent post, we were trying to keep her hands away from the breathing tube because she kept touching it. Nayeli is indeed boss and the boss said she was sick of being on a ventilator. Initially, we were both scared and asked if she was going to be intubated again. The nurse said the Dr was aware of what had happened sand said she was doing just fine without it. So, at this point, they have decided to leave the vent off to see how she does. We were so happy we both started to cry. It was also awesome because we finally got to see her cute little mouth and chin. They still have a breathing device on her nose giving her some nice rich oxygen, but she is now breathing on her own! We thank God for this blessing and ask him to make it be forever.

So, after this discussion, the Nurse said, "Would you like to hold her?" I looked at Liz and told her to go first as she obviously earned this right! I am so thankful for my warrior queen and princess, they are amazing girls. Before we could hold her, several Dr's came in and said we would need to step out for a bit so they could do xrays and an echocardiogram to see how Nayeli was truly responding to being off of the vent. We were dissapointed, but I did take a quick video of her off of the vent.

We finally left the hospital and went to a place Alex Hidas arranged for us. We are so thankful this opportunity presented itself. I went there to meet Alex's "brother's mother" (who owns the home) last night. I hugged her and cried when she told me, "I know your situation, years ago when I came to this country someone helped me and now I am going to help you."

In closing, it took us a while to update this because we have been taking turns holding our daughter all day. What an amazing feeling. I cried when I watched Liz hold her, and she cried when I did. Very emotional day for us. We are so thankful....God is really watching over us and our daughter. We will continue to pray that things continue on the path of recovery for our baby girl. We are so thankful as the only person that can give us these gifts and the miracle of our little girl is God.