Nayeli before she goes to NICU
Mommy holds Nayeli's hand before she goes to NICU
Firt Family Photo (Liz with only 4 hours of sleep in 2 days)
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Born October 22, 2008 at UCSF weighing 6 lbs 15 ounces and 21 inches long
Nayeli was diagnosed with severe Left Congential Diaphragmatic Hernia (LCDH) during her 18 week ultrasound, on June 4, 2008. We created this blog to keep family and friends updated, and to raise overall awareness of CDH. During my pregnancy I always read this verse Psalm 121:1-2 I lift up my eyes to the hills where does my help come from? My help comes from the LORD, the Maker of heaven and earth.
Nayeli Faith
Born October 22, 2008 at UCSF weighing 6 lbs 15 ounces and 21 inches long
ABOUT US
- Liz and Shane
- Bay Area, CA, United States
- Shane and I got married on May 27, 2006. We live in SF Bay in California. Shane is a Police Officer and I am an Animal Control Officer for the same Police Department. We have two dogs Twinkie(chihuahua mix) and Molly (dachshund) and a tabby cat named Max. We found out our baby girl Nayeli was diagnosed with LCDH on June 4, 2008. We were expecting Nayeli on November 2nd. Nayeli was born October 22,2008. We have had great support from other CDH families and through other CDH links below.
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BLOG ARCHIVE
- June 2008 (4)
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OTHER CDH BABIES
- Lauren (08/30/1991)
- Baby Alina (12/20/08)
- Baby Andrew B.(02/24/08-02/25/08)
- Baby Andrew H.(10/01/09-10/30/09)
- Baby Austin Josiah (03/24/10- 03/26/10)
- Ava (08/31/06)
- Baby Ava (04/13/09-04/13/09)
- Baby Averi Hope (11/30/09-12/28/09)
- Baby Avery (05/12/09-07/14/09)
- Blair (01/14/07)
- Baby Bodee(11/08)
- Briana (12/02/09-12/20/09)
- Baby Brooke and Kamryn (06/17/09)
- Cadenne (12/06/07)
- Baby Camden James (01/22/09)
- Baby Carter (10/07/08)
- Baby Ceceilia (11/02/99-12/10/99)
- Baby Charlie (02/04/09)
- Claire (06/07/07)
- Baby Colin (04/02/09)
- Baby Davis (01/30/09)
- Ella (07/24/07)
- Baby Elli (08/19/08-09/08/08)
- Baby Faith (03/06/08-04/05/08)
- Baby Gabriel (11/18/06-01/18/07)
- Baby Gabriel (03/02/08)
- Imogen (04/09/05)
- Baby Ireland Rose (08/19/09 - 08/30/09)
- Jack (08/20/07)
- Baby Jackson (07/29/09-08/08/09)
- Jackson (03/05/06)
- Baby Jaime (04/16/09)
- Baby James (06/09/09)
- Baby Jaxson (5/19/09)
- John (June 2003)
- Baby Joseph (02/03/09 - 02/26/09)
- Baby Juan Pablo (06/01/07)
- Baby Kayden (10/27/08)
- Kaden(08/12/04)
- Baby Kaden Alex (04/03/09 - 04/20/09)
- Kaden (07/25/07)
- Baby Kaden (08/18/08-09/16/08)
- Baby Katie (04/10/09)
- Kayla Mae (03/04/09)
- Baby Kinley (05/25/08)
- Kylie (02/04)
- Leah (08/11/05)
- Baby Lewis Anthony(10/31/09-11/1109)
- Baby Lewis Nathan Richard Boyd(11/12/09)
- Baby Liviana (01/18/08)
- Makena (09/30/06)
- Marco (03/02/07)
- Mason (05/25/07)
- Baby Maximus (08/10/09)
- Baby Maxton (03/03/09-03/21/09
- Baby Ned (01/21/08)
- Noah B. (06/07/07)
- Noah (09/20/06)
- Baby Oakley Elissa Mae (02/12/09)
- Baby Olivia and Mason (11/21/08)
- Baby Owain (01/25/08)
- Owen (03/06/07)
- Par (11/01/07)
- Baby Parker (05/06/06-05/08/06)
- Baby Rafa(07/14/09 - 08/17/09
- Baby Ryann (12/27/08-01/05/09)
- Baby Ruby Hope (04/10/09)
- Seth (04/20/07)
- Baby Sofia (03/10/08)
- Baby Skyla (10/13/07-06/13/08)
- Baby Sydney (11/05/08)
- Baby Vincent (09/16/09-10/02/09)
- Baby Virginia (02/17/09-03/11/08)
- Baby Weston (07/2007)
- Baby Wyatt (10/09/07)
CDH Allies CarePages. Register, click "visit care page". Then type baby's name as shown.
SF marathon for NFF 2013
CDH INFO AND LINKS
WHAT IS CONGENITAL DIAPHRAGMATIC HERNIA?
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
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21 comments:
Yipee - love the pictures! Keep em' coming! Love, Amy & Family
She is beautiful!
Amber
Nayeli is such a cutie! And lots of hair~ Must have been those Big Mac's!
Heal quickly Liz and hopefully you'll both get some sleep. She looks strong...keep your faith.
Lots of love and prayers coming your way!
Harris
Nayeli is beautiful!!! She looks really good. Make sure you guys get some rest and take care of yourselves. We're sending lots of prayers your way!
Lots of love,
Jen & Jer Rocha
she is beautiful, congratulations. i hope the road ahead is as smooth as possible and she fights this awful defect with all her might. we're praying for her.
Joanne and John Michael R-CDH 3/11/07
She is so beautiful. Keep fighting beautiful girl. So many people are praying for you.
Kristy, mum to angel SKYLA, LCDH
http://skylacdhbaby.blogspot.com
You guys look great! Nayeli looks beautiful! Still praying for Nayeli let me know if you need ANYTHING!
She is precious guys. You are indeed blessed. She will beat this thing I know it in my heart. Stay strong and positive..she is a true miracle. Keep the faith. Love to all, Gail
She is BEAUTIFUL!! Good job Liz and Shane! I am so happy for you 2!!!
Lots of Love!!
Gina
Congratulations Liz & Shane. Nayeli is beautiful. We are so proud of the three of you. You are always in our prayers.
Dawn & Brianna Wirth
Oh my gosh! Look at all that hair! She's a beauty!!! And so big. WOW :)
wow the pictures are great! Looking forward to more updates on mom/Nayeli/dad. :)
-Megan, Nik, and John Michael
Carepages.com, JohnMIchaelLarson
Great photos! Congrats, she is very cute. Welcome to the world Nayeli, you have the same birthday as Nicole. Get some rest guys. All three of you are in our thoughts and prayers.
Ron & Nicole
She's beautiful - thanks for sharing!! I hope Liz can get some rest and heal quickly. Nayeli looks great - love the hair!!
Jen
She is beautiful!!!!!! Saying tons and tons of prayers for all of you!!!
What a gorgeous little girl! How is she doing?
love the pictures you have a beautiful baby I will be praying for you all!
She is so beautiful!! So happy she is here you all are ok. I hope she goes home on her three week birthday like John Micheal..
Ammiee and Tony
Absolutely wonderful pictures! She is so beautiful. You all three look really great.
Lots of love and hugs,
Rita and Claudia
Nayeli is so beautiful!
Nayeli is BEAUTIFUL! Love the family pics, you are in my thoughts and prayers.
~Megan
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