Her breating rate is still the same it can go from 45 breaths per minute to as high as 145 BPM from the average of what the machine multiplies it by. It's complicated to explain. The Dr's have told us it's the norm for all CDH babies and we are aware of that. Yesterday Shane and I took turns reading the Jungle Book to Nayeli. Shane also sang the song "Sailing" by Christopher Cross to her. Shane's mom played this song for him when he was a baby.
I got to hold Nayeli skin to skin yesterday also. It was an incredible feeling and bonding experience. Shane and I got to give Nayeli a bath for the first time. Nayeli was not liking it at all. She just had a dose of morphine because she was crying for over two hours. The calming effect Shane and I have on her feels awesome. When Shane and I walk in the room and she is crying, we talk to her, touch her, and give her a binky and she almost always stops crying. Shane and I are learning to read her wants and needs every day. The nurse thought giving her a bath would be calming. It was making Shane and I nervous and we were sweating alot. I also starting to leak alot of milk from hearing Nayeli cry. After we got Nayeli dry in warm blankets she stopped crying. We are praying each day that she gets better and her fluid in her chest dissapears.
Like father like daughter....note the hairstyles
10 comments:
Liz and Shane she is absolutely ADORABLE! I hope you guys have a great Halloween! So glad you got to give her a bath. How fun and nerve racking at the same time!
Happy 1st Halloween Miss Nayeli.
~Terri, Ava and Brian
Nayeli is gorgeous! You have a very beautifl daughter.
Love, Fer.
CHERUBS Mexican Rep.
How precious! Unfortunately the sweating for Mom & Dad doesn't ever stop! I still sweat when I am stressed about something as a Mommy! Happy Halloween! Love, Amy
Absolutely precious..and that cry is heaven sent..keep stretching those lungs Nayeli...great exercise! I didn't hear my son's first cries for 3 whole weeks. Keep the faith...love to all, Gail
How beautiful and strong God has created Nayeli to be! And you two look like pros already!
Blessings to you today!
Love,
Sonya
She is so beautiful and you can see the determination and fight in her !! Happy Halloween Nayeli :)
-Jenn Ray
Nayeli is such a beautiful little girl!! Many continued prayers the fluid in her chest will resolve soon and she will not need a chest tube. GOOD DAYS ONLY FOR MISS NAYELI--that is what we all like to hear. How wonderful to be doing her "cares" this soon--she is doing great. Liz and Shane--you look very rested in the current pics and even more relaxed. Beautiful family!
Happy Halloween Miss Nayeli--you don't even need a costume, for you are the most beautiful princess in pink!!
Tracy Meats - mom to Ian(born with a LCDH on 4/3/04) and WY and CO State Rep. for CHERUBS
Happy Halloween! My heart melted when I read about Nayeli's first bath. Bathing our son for the first time was so fun and emotional, I'm sure it was the same for you. I'm glad she does not need the tube for that fluid. I have a feeling Nayeli will be home with you soon!! :)
-Megan
mommy to John Michael
I think Shane needs a pink bow too. :o)
She's beautiful!
If there is a good time for it, we would love to come by and say hi.
Love,
Jenna & Will
She is beautiful - I think she looks like both of you!
Keeping you all in my thoughts and prayers - keep remembering she is doing really well. I know you are concerned and have EVERY right to be - she is your baby!
Lung function chants for Nayeli,
Elizabeth
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