Baby Steps

Nayeli is doing well and continues to be as stable as can be. We love our little girl with all of our might!

Nayeli had an echocardiogram yestderday morning. They did not read the results until this morning when we met with the DR's during their usual morning rounds. The DR's have upped Nayeli's feeds to 65 cc's. They lowered her additional calories for a day or so and upped her breast milk intake because she had some problems keeping her food down. She is still making daddy proud with some neon brown breast milk poops....daddy loves his little poopy girl! When she poops, daddy fondly announces she has "poopy on her doopy."

The DR's said they plan to slowly wean her off of Lasics and will also lower her oxygen input from 3 to 2%. Nayeli is currently breathing room air on her own, but they are still giving her some high flow oxygen through the nose cannula to supplement her. Yes, I said high flow cannula....Nayeli is off of the C-pap now too! Her breathing has come down a bit, but still ventures into the 100+ breath per minute range at times. The goal is obviously to get her off of the cannula all together.

In regards to the echo, we got wonderful news. The DR's said her lung and heart pressure is down considerably from the last echo and is just about what a non-CDH babies pressures would be. We were stressing about the results of this echo and feel very blessed to have received this news. We thank God for making our baby girl breath easier and also for keeping her pulmonary hypertension in check.

On another good note, Liz started breast feeding Nayeli last night. She took to it like a champ at first, and then seemed to get frustrated because it was so much work for her. Our little princess is not used to having to work for her food. Overall, she managed to get about 10 cc's from Liz and the nurse then fed her the rest through her feeding tube. Liz tried to feed her again a few hours later and Nayeli again got frustrated, cried, and fell asleep on Liz's breast. Today, Nayeli has been sleeping all day so Liz has not been able to try feeding her again. The nurses do not want to wake her to breast feed. They would normally do so, but baby girl had a rough night again last night and they eventually had to give her Adavan to relax her. The medication given to her has decreased substantially, but Nayeli still has some bad go arounds and needs a little help relaxing.

So, the plan for now is to continue trying to breast feed, slowly wean Nayeli off of the cannula, monitor her lung and heart pressures, and the fluid that is still present in her chest and lungs. The DR's did say they did an x-ray and the fluid level looks a lot better and the Lasics appears to be doing the job. I am sure princess will be very pleased the day there is nothing attached to her head or face.

More to follow!