When we arrived at the hospital one of the Dr's told Shane that the C PAP will be on for a few days to see if her breathing rate will come down. That is what they are hoping for. The other hope is that the C PAP will expand her lung to push the fluid out that is accumalated in her chest.
On a good note, according to Dr's, Nayeli is becoming less dependent on pain medication (although she did have a bad few hours last night). They have also upped her feedings to 42 cc's, she is so close to eating like a baby not in the NICU. We pray she adjusts well to this increase in food and does not have any issues keeping it down!
We are praying that the C PAP will help Nayeli and will resolve her breathing rate and the fluid in her chest. Please pray for Nayeli, we know that this is one turn on the roller coaster we are on and will lengthen her stay here. We hope we face a smoother ride from now on.
14 comments:
Praying for you & Nayeli and that the CPAP does it's job and is off soon! Love, Amy & Jon
This is a good thing - she is doing remarkable! I know you are so concerned - and have EVERY right to be - wonderful parents!
Keeping you all in my thoughts and prayers and still sending Miss Pretty in Pink LUNG FUNCTION chants!
Elizabeth
You got it...I am praying very hard for her and you are right, you are facing another hurdle, but she will get through it and so will the both of you. This condition forces parents to see the highs and lows that it brings, but trust me when I say this, she is doing so much better than my son did..and she will progress. It may not seem like it, but the cpap may be a blessing in disguise..if Nayeli had to work so hard to breathe while her lungs are growing..it may have taken her twice as long to be where she needs to be to get home. Any help she can receive to make it easier on her is a good thing. Think of all of the poor babies in this country and others that don't have access to the best equipment...she is indeed blessed. hang in there and know, that these little bumps in the road are to be expected and you will all be fine when all is said and done. Keep the faith. Love to all, Gail
We are praying for Nayeli.
-Megan and baby John
Jason uses a CPAP when he sleeps, so it's so cute to see a mini one on Nayeli. It really helps him sleep soundly and have a lot more energy during the day. It is so much healthier for him. I know it's scary with all those tubes and it feels like a setback and it's okay to worry because that parental protection in you is in high gear. She is under amazing care and thank goodness because they monitor everything and have her best interest. I bet you will start to see great results. She is so strong surrounded by such love...and sooo beautiful, too!xoxo
Liz, Shane,
Nayeli looks so peaceful! I know this will help her! I pray constantly that the drs will have wisdom!
Love, Sonya
Continued thoughts and prayers for Princess Nayeli.
Sorry to hear that she needs CPAP, but like you said it will give her lungs a rest. I hope that the fluid issue gets resolved soon.
Amy
By the way she looks very cute in white.
I will be praying for you and Nayeli. My son is a CDH survivor. He had alot of fluid buildup also they eventually put in a drain tube and that worked. Stay strong. Just remember and I''m sure you've heard this a thousand times but it's one step forward and 2 steps back. CDH babies are so strong and so are you. You will be in our prayers.
She has a hockey player's fighting spirit! :o)
She is doing great!
I'm glad you were able to visit with Molly and Twinkie. Brody is sitting with me now, sending his love.
Liz, love the "Check us out" picture of mommy and baby under "First Bath".
Jenna & Will
I'm praying so the C-pap helps her. Always thinking about you guys.
Fer
We are and will continue to "root" and pray for Nayeli. She's a fighter. I just know she'll come through this! You guys stay well.
I haven't checked in for awhile! I am so happy with the progress that Nayeli is making! What a strong and beautiful baby girl you have! I will continue to keep the prayers coming your way!
Amy Miles
We are glad to hear she is progressing so well...the Cpap will give her the extra help she needs. We love seeing her pictures.. she is changing in front of our eyes...
Prayers and love to all of you....
JIM & DEE
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