Our Home Sweet HOME

Wow. What a journey so far. It is almost impossible to put our feelings into words. Again, we cant help but have the word "Miracle" in mind. Both of our emotions are flying so high, pulling up to our home.....Nayeli's home. When we got home, we carried Nayeli inside in her car seat. She was so precious and passed out at the moment.

So, before we get to all of this. We met with Nayeli's primary DR. He is a Kaiser DR but is doing a stint at UCSF. We want to extend our deepest, heartfelt thanks to the DR's, nurses, social workers, food workers, and every other staff member in that building that was a part of our daughter's and our life. What a first class great facility with unbelievable staff. Our heart tells us to thank individual people for individual efforts....and there were a lot of them....but we would be here forever doing that. Every person there played a roll in saving our daughter's life, comforting us, and even feeding us. THANK EVERY ONE OF YOU and may God bless you and your families.

Home with our baby girl. We are finally getting the feel of parents with a new born baby..a hungry....pooping....crying when she poops or is hungry new born. And guess what, we love it! We feel so fortunate and blessed to have each and every minute, hour, and day with Nayeli, so we take the late night wakes and crys with smiles and droopy eyes. She is so strong, aware, and interested in her surroundings. Twinkie, Molly and Max seem not to be too bothered by Nayeli. Well, at least Twinkie and Molly. Max runs when Nayeli screams and has recently taken to sleeping downstairs on whatever couch the dogs are not on. Get he is getting older and needs his beauty rest. So, we are adjusting to now actually getting to be parents of a child away from the NICU...the beeps, scampering DR's and Nurses, and wires and hoses. As a recent post said....our little "wireless" Nayeli.

From a "medical" standpoint, Nayeli is eating well and often. She is pooping and peeing like a "normal" baby also. With her CDH, comes the gas and ocassional vomiting. With this being said, we have to move Nayeli very minimally and slowly after she eats to prevent her from vomiting. So far, we have done fairly well with this task. Nayeli takes 4 different medications for her tummy, acid reflux, gas, and a vitamin enhancement. We also add a small scoop of Similac to each of her meals to further fortify Liz's breast milk to help Nayeli grow faster.

With all this being said, we want to thank everyone for the great home cooked meals, especially with us now being at home. We thank you all for your continued support and prayers. It means so much to us and reminds us of all the wonderful friends we have. We are a very lucky and blessed family based on everything mentioned in this blog. Please keep the support and prayers coming as we deal with gassy (due to her condition) baby Nayeli.