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Nayeli Faith

Nayeli was diagnosed with severe Left Congential Diaphragmatic Hernia (LCDH) during her 18 week ultrasound, on June 4, 2008. We created this blog to keep family and friends updated, and to raise overall awareness of CDH. During my pregnancy I always read this verse Psalm 121:1-2 I lift up my eyes to the hills where does my help come from? My help comes from the LORD, the Maker of heaven and earth.

Tuesday, November 15, 2011

Nayeli 3 year pics

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Nayeli Faith

Nayeli Faith
Born October 22, 2008 at UCSF weighing 6 lbs 15 ounces and 21 inches long

ABOUT US

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Liz and Shane
Bay Area, CA, United States
Shane and I got married on May 27, 2006. We live in SF Bay in California. Shane is a Police Officer and I am an Animal Control Officer for the same Police Department. We have two dogs Twinkie(chihuahua mix) and Molly (dachshund) and a tabby cat named Max. We found out our baby girl Nayeli was diagnosed with LCDH on June 4, 2008. We were expecting Nayeli on November 2nd. Nayeli was born October 22,2008. We have had great support from other CDH families and through other CDH links below.
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BLOG ARCHIVE

  • June 2008 (4)
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OTHER CDH BABIES

  • Lauren (08/30/1991)
  • Baby Alina (12/20/08)
  • Baby Andrew B.(02/24/08-02/25/08)
  • Baby Andrew H.(10/01/09-10/30/09)
  • Baby Austin Josiah (03/24/10- 03/26/10)
  • Ava (08/31/06)
  • Baby Ava (04/13/09-04/13/09)
  • Baby Averi Hope (11/30/09-12/28/09)
  • Baby Avery (05/12/09-07/14/09)
  • Blair (01/14/07)
  • Baby Bodee(11/08)
  • Briana (12/02/09-12/20/09)
  • Baby Brooke and Kamryn (06/17/09)
  • Cadenne (12/06/07)
  • Baby Camden James (01/22/09)
  • Baby Carter (10/07/08)
  • Baby Ceceilia (11/02/99-12/10/99)
  • Baby Charlie (02/04/09)
  • Claire (06/07/07)
  • Baby Colin (04/02/09)
  • Baby Davis (01/30/09)
  • Ella (07/24/07)
  • Baby Elli (08/19/08-09/08/08)
  • Baby Faith (03/06/08-04/05/08)
  • Baby Gabriel (11/18/06-01/18/07)
  • Baby Gabriel (03/02/08)
  • Imogen (04/09/05)
  • Baby Ireland Rose (08/19/09 - 08/30/09)
  • Jack (08/20/07)
  • Baby Jackson (07/29/09-08/08/09)
  • Jackson (03/05/06)
  • Baby Jaime (04/16/09)
  • Baby James (06/09/09)
  • Baby Jaxson (5/19/09)
  • John (June 2003)
  • Baby Joseph (02/03/09 - 02/26/09)
  • Baby Juan Pablo (06/01/07)
  • Baby Kayden (10/27/08)
  • Kaden(08/12/04)
  • Baby Kaden Alex (04/03/09 - 04/20/09)
  • Kaden (07/25/07)
  • Baby Kaden (08/18/08-09/16/08)
  • Baby Katie (04/10/09)
  • Kayla Mae (03/04/09)
  • Baby Kinley (05/25/08)
  • Kylie (02/04)
  • Leah (08/11/05)
  • Baby Lewis Anthony(10/31/09-11/1109)
  • Baby Lewis Nathan Richard Boyd(11/12/09)
  • Baby Liviana (01/18/08)
  • Makena (09/30/06)
  • Marco (03/02/07)
  • Mason (05/25/07)
  • Baby Maximus (08/10/09)
  • Baby Maxton (03/03/09-03/21/09
  • Baby Ned (01/21/08)
  • Noah B. (06/07/07)
  • Noah (09/20/06)
  • Baby Oakley Elissa Mae (02/12/09)
  • Baby Olivia and Mason (11/21/08)
  • Baby Owain (01/25/08)
  • Owen (03/06/07)
  • Par (11/01/07)
  • Baby Parker (05/06/06-05/08/06)
  • Baby Rafa(07/14/09 - 08/17/09
  • Baby Ryann (12/27/08-01/05/09)
  • Baby Ruby Hope (04/10/09)
  • Seth (04/20/07)
  • Baby Sofia (03/10/08)
  • Baby Skyla (10/13/07-06/13/08)
  • Baby Sydney (11/05/08)
  • Baby Vincent (09/16/09-10/02/09)
  • Baby Virginia (02/17/09-03/11/08)
  • Baby Weston (07/2007)
  • Baby Wyatt (10/09/07)

CDH Allies CarePages. Register, click "visit care page". Then type baby's name as shown.

REGISTER HERE

AvaHelmick
ElizabethJoGray
johnmichaellarson
SydneyTaborelli
BabyGiavanna

SF marathon for NFF 2013

SF marathon for NFF 2013

CDH INFO AND LINKS

  • Nayeli Faith Foundation
  • Breath of Hope
  • Breath of Hope video (Nayeli's video is on here)
  • Cherubs
  • Cherubs blog
  • UC San Francisco
  • Repair surgery
  • Fetal Surgery Article
  • Global CDH
  • Parker Reese Foundation
  • The Jack Ryan Gillham Foundation
  • Moment by Moment

WHAT IS CONGENITAL DIAPHRAGMATIC HERNIA?

A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.

CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.

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