Sunday, April 26, 2009

I am ready for a BIG MAC

We gave Nayeli solids for the first time today. A few weeks ago I spoke with the UCSF nutrionist in the CDH clinic over the phone. The nutrionist at UCSF told us to start with a few spoonfuls of Rice Cereal once a day. She said if Nayeli does well with it then we can increase it to twice a day then three times a day. Nayeli was ready the moment she saw the spoon coming towards her. She ate like if she had been eating from a spoon for a while. She enjoyed eating from a spoon and kept wanting more. She would grunt and then try to get the spoon or bowl. She hasn't puked and hasn't had any allergic reactions. We are going to try to give her the rice cereal once a day for a few days and then slowly increase it. The nutrionist also said once she handles the rice cereal well we can move her onto fruits and veggies as long as they are blended with my breastmilk.

video
We noticed Nayeli's bottom two front teeth peeking through her gums a few days ago. Everytime we try to take a picture she sticks out her tongue. The weather has been warming up here. It got to be over 90 twice. We are trying to figure out how to cool off the house with the AC without making it too cold for Nayeli. We are looking forward to winter lockdown being over. We are counting the days. We thank God for each milestone with Nayeli.

Wednesday, April 22, 2009

Nayeli is 6 months old today!


Nayeli is 6 months today! Shane and I have looked back and can't believe it's been 6 months. It seems like we were at UCSF yesterday not knowing what was going to happen to Nayeli. We are so thankful grateful to God and have praised him during the storm and continue to praise him.
Psalm 121:1-2

Tuesday, April 21, 2009

Kaden Alex Kuehl

"And now these three remain: FAITH, HOPE, and LOVE. But the greatest of these is LOVE." 1 Corinthians 13:13

Kaden Alex Kuehl lost his battle against CDH yesterday evening. Shane received a text from Craig last night. I knew there was something wrong because, Shane was very quiet when I came downstairs. Shane was in tears and told me Kaden passed away. I was in denial. The news made me so sad. Shane and I just cried and held each other. We have become close with Kristi and Craig through our respective battles with CDH. They are an amazing, strong, faithful, and positive couple. They never gave up on Kaden. We have the utmost respect for them because of this. They are a model of strength, faith, and positivity, and we all stand to learn something from them!

We will always have a special place in our hearts for Kaden.

Wednesday, April 15, 2009

Pull Ups

Ever since we took the top part off of the pack n play Nayeli loves playing on the bottom part. The other day she fell asleep in it while the dogs were barking, and we were making noise in the kitchen. Today Nayeli did pull ups all by herself. We are amazed by her stregnth. Here is a video of Nayeli doing pull ups. She thinks they are so much fun. video
Please continue to pray for baby Kaden who is at UCSF fighting CDH. He is having a tough time right now. Please pray that he gets stable so they can do his repair surgery. Please pray that God will give him the strength to heal.

Monday, April 13, 2009

Pray for CDH Warrior Kaden


Liz was on her way to see Kaden at UCSF yesterday, she received a message from Kristi not to come because he isn't doing well. Baby Kaden needs our prayers right now. He has shown so much hope and a warriors spirit....many good signs that he wants to heal! God will hear our prayers and give Kaden the extra strength he needs to overcome his battle with CDH.

I spoke with Craig (Kaden's daddy) last night and we talked about not giving up and fighting for Kaden. Of course, Craig and Kristi are wonderful people of faith, hope, and positivity! They are hopeful, faithful, and positive people and a model for us all!

Once you spoke in a vision, to your faithful people you said: "I have bestowed strength on a warrior; I have raised up a young man from among the people." Psalm 89:19

Sunday, April 12, 2009

Happy Easter!

Yesterday I noticed a bluish spot on Nayeli on her lower back. I got worried and told Shane. Nayeli had been eating fine, no fever and was acting normal. We called Kaiser our HMO. The nurse told us it's a birth mark and it's called Mongolian spot. The nurse said it usually goes away by the age of 2 or 3. I called my mom and told her about it and she told me I had the same thing as a baby and so did my niece and nephew and it went away. I was relieved to hear this. This morning when I was burping Nayeli she was trying to reach out for something next to me I didn't know what it was until I looked over my shoulder. It's the gift that Angel Elli gave Nayeli before she was born. Shane grabbed the camera and started to film Nayeli. Everytime I would lean back away from the cross she would fuss and wanted to get closer to touch it. Shane and I were in Awwww over Nayeli doing this on Easter. video
We received a gift from Marion and Jason, Angel Addison's mommy and daddy yesterday. We hung it up next to Angel Elli's gift. We are so touched by Jason and Marion's gift.Shane and I took turns going to Church today for Easter Service. We are looking forward the day we can bring Nayeli with us to church. We took pictures of her in her cute dresses. All dressed up but no where to go. We are so amazed each day over how big and strong Nayeli is getting. She is growing so fast. Nayeli was crying when I got home from church this morning. Shane was holding her to soothe her and Nayeli said MaaaMaaaa during her cry. I hope this counts as her saying MaMa first. Shane was sad and was hoping she would say DaaaDaaa. I think she has been talking with Carter because he said Maa to Kellie yesterday while he was crying too. Yesterday Shane went to visit our friends Kristi and Craig's baby Kaden at UCSF who is fighting CDH. I plan on going today. Shane just got word from Craig that Kaden off of ECMO today and he is doing well. We are praying for Kaden everyday. Please pray for Kaden to fight CDH and get stonger.

Sunday, April 5, 2009

My Girl


We are excited that the weather is warming up because that means its almost time for Nayeli to be able to go into crowds and have visitors. We received a call from her pediatrician a couple of weeks ago regarding her last RSV vaccine. They told us they are going to cancel it for the month of April because RSV is low nationwide. We think that RSV being low is great news but we are still worried about not getting the vaccine. We are looking forward to see what UCSF has to say to us at the end of the month. Nayeli has had some reflux but overall is doing great. UCSF has told us to start having her eat solids once she turns 6 months or wait until we see them. I have been loosing alot of my hair lately that I think I am looking bald on the front of my forehead. Shane has to unclog the drain alot. I cut my hair shorter too since Nayeli has been pulling on it alot lately. Nayeli has figured out how to roll onto her tummy and back onto her back. Most of the time she gets stuck on her belly and gets upset.

I couldn't decide which pictures to put up on our blog so here is a slideshow. I got teary eyed watching it. Enjoy!

Yesterday I went to visit Kristi and Craig at UCSF. I met their baby boy Kaden. Kaden is fighting CDH right now. Kaden was put on ECMO yesterday. Shane and I have been praying for them. Please pray that he gets stronger each day.