Thursday, January 22, 2009

Happy 3 month Birthday Nayeli

Our little girl is 3 months today! She has taught us so much in the last three months. She is getting stronger everyday. This morning when I unswaddled her in her bassinet she tried to rollover. She was laying on her side and her face was facing down. When I saw that her face was being covered I freaked out. I know she will be rolling over soon but the thought of her rolling over and not being able to turn back over scares us. Her gas issue is alot better. She is also latching on to my breast alot longer. The longest she will stay on is 10 minutes. She gets very tired and short winded. She is still hungry so I give her the rest of her feed in the bottle which is 50 to 70cc. We are so grateful that she is doing well. She has started to say grrr and brrr alot. It's very cute. I will try to video it, everytime I try she just stares at the camera. We thank God for Nayeli everyday. Thank you for your continued support.
Nayeli is wearing her gift from her friend John Michael Larson in Alaska. She just woke up from her nap in the picture. She loves to nap. We do too!

Tuesday, January 20, 2009

Nayeli Strikes A Pose

Over the weekend we took pictures of Nayeli in her cute dresses. We turned up the heat to 80 while taking her pictures. Nayeli was comfy while mommy and daddy were sweating. She had fun posing and looking at the camera.

Sunday, January 18, 2009

Nayeli's Car Ride

Nayeli had her 3rd RSV shot on January 12th she has 3 more to go. She weighs 11 lbs. 2oz.

On Friday the 15th, we took Nayeli on her first car ride that didn't include a stop to the Dr's office. Twinkie and Molly were her support team and came along. We only took Nayeli out of her carseat to change her and feed her. She enjoyed the car ride and slept on the way home. We would love to take her on a stroller ride but will have to wait a little longer. We also would love to show her off to our friends and take her places with us. We are hoping we will be able to take her out by May. Which is the end of cold and flu season. We can't wait!

Shane went back to work four weeks ago. Nayeli and I miss him so much. Shane has been doing most of the cooking during the week. He is a great cook! I am so lucky to have such a loving husband. Shane and I have been taking turns getting out of the house. I went for a walk with my doxie meetup group last weekend for the first time since September. Molly, Twinkie and I were happy to see everyone. Shane has been playing ice hockey. He is getting ready for a hockey tournament coming up in one week. I also went to church today for the first time since October. It felt great going. Shane's turn is next week and he is looking forward to it.

Shane and I ask you to pray for the following CDH families:

Precious Alina is no longer on the CPAP and has been breathing on her own for a couple of days. We are praying she gets stronger and is able to oral feed well. She will be starting her oral feeds this week.

Princess Ava, we are praying that her stomach settles and she stops throwing up. She has been through so much. Ava is due to have surgery on the 27th. We are praying her surgery goes well and is not in the hospital for very long.

Rockstar Carter has been in the hospital for over 103 days and got moved out of the intensive care unit into the transitional care unit which is a step closer to being discharged. He is having issues with his oral feeds but overall is doing great. We are praying he gets to go home soon with his mommy, daddy and Lucy (boxer dog).

Sweet Olivia took her first bottle feed yesterday and did great! We are praying she continues to do well and she can go home soon.

Beautiful Sydney has been put on the ventilator for a few days due to her pulmanary hyptertension. The Doctors have said it will go away with treatment. We are praying she overcomes this hurdle and continues to do well so she can go home.

Thursday, January 8, 2009

Nayeli the Explorer

Nayeli has been cooing more and smiling alot more. She likes to explore things around the house and is fascinted by Twinkie and Molly. She sleeps right through them barking. Here are the some photos and video.

Nayeli's cousin Andrea drew the nice artwork at our baby shower in LA


Tuesday, January 6, 2009

Angel Ryann

I am in tears typing this. Baby Ryann lost her battle with CDH on Monday. When I found out the news I was devastated. Pleasy pray for her family. Ryann has an older sister Reggan who is having trouble understanding. Please keep her parents David Jaime, and their family in your thoughts and prayers in this difficult time.

Sunday, January 4, 2009

Hello 2009!!!!!

Let us start by saying Happy New Year to everyone. We hope your new year brings you everything you hope for. We are still amazed we are home with Nayeli. It is surreal to us after all she and we, as a family, have been through. We continue to feel blessed and fortunate for each and every minute, hour, and day we have with our baby girl!

We started off the new year with an appointment at Kaiser. Nayeli weighs 10lbs. 11oz and 23 3/4 inches long. Nayeli got a "well baby" check, three shots (DTP, Pneumo Conjugate vaccine, and Influenza vaccine), and a liquid form (for whooping cough) of medication. We don't think she appreciated her after Christmas gift. When the Nurse gave her the first shot...she lobster red.....and moments later, screamed at the top of her lungs. This happened with the remaining shots. Poor baby. Liz cried with Nayeli and I held Nayeli's hand and assured all would be well soon. The Nurse said the shots could cause Nayeli to have an elevated temperature and signs of illness. We got concerned about this and made the Nurse go ask the DR if he truly wanted to give Nayeli the shots. The DR said he did as this would prevent her from getting sick and having a dreaded visit to NICU (which is almost a a guarantee if she gets sick). We are still very paranoid about any of us getting sick, and per the DR's, rightfully so. For this reason, we continue to limit and be very sketchy of visitors. WE hope everyone understands, and we assure you all, we want to show Nayeli off as she is beautiful. After what Nayeli has been through, and at the direction of the DR's, we will be paranoid until at least late spring or summer.
Nayeli getting examined

Nayeli getting her oral vaccination

Nayeli is hungry after her exam

Nayeli's pediatrician Dr. Hahn

So, on to other things. Nayeli's appointment was this past Wednesday and she has had some wierd stuff going on since she came home. She has vomited pretty much a full meal, but mommy suggested this may have been due to over feeding her. But, then she puked about a mouth full of brown fluid and that freaked us out as we thought it was blood. For those of you who do not know, vomiting is a major sign of re-herniation. As you can imagine, we freak out every time she vomits, which has been in small amounts since we changed her formula. Of course, we cant help but associate every spit up as possible re-herniation. This is a reality we will live with for many years. We called the DR once, didn't like some of the responses, and called back again to confirm. In the end, the DR and Nurse suggested that if Nayeli did not have a fever, was eating, and acting normally, it was not worth bringing her in due to the fact the hospital is full of sick parents and kids. In the end, we were comfortable with the DR/Nurse's suggestions and decided not to expose Nayeli to all the sick people on the weekend. On the weekends, it is a sick baby clinic only. The appointments, during the week, are still a risk, but less crowded and easier to stay away from sick people.

Since Naylei's DR visit and shots, she has displayed some things we have not seen. This has been pretty concerning to us and if it continues, we will be taking her in this week. Nayeli's spitting up has stayed pretty steady (in usually small amounts of what appears to be milk) but her gas has now increased. This is unusual to us as her gas had been pretty good since switching the formula we are putting in the breast milk. The past several nights, Nayeli has sounded very congested and seems gassier than normal. Last night, after feeding, we lied her down and she burped most of the almost six hours she slept. This was after we got worried about her still burping and mommy picked her up and burped her a second time. She still had gas and burped for several hours, but did not vomit. This morning, she awoke with pretty bad gas and had to be burped for 30 minutes before she would eat. Then, after feeding, she had to be held upright and burped for an hour and 15 minutes before her burps and audible gas stopped. We are not sure what to do and plan to talk to the DR first thing tomorrow. We are hoping Nayeli continues with her trickery of Mommy and daddy, and suddenly gets better tomorrow, like she did when we took her to the ER when we first brought her home.

On a happy note, Grandma Victoria and Grandpa Telly visited this weekend. We had some nice dinners courtesy of them, and as usual, they were a great help in tidying up our house. Grandma Victoria also watched Nayeli for a couple of hours while we went to the Cheesecake Factory for lunch. Liz had her favorite sun dried tomato and fettuccine pasta and I got adventurous and had a hamburger. It was the first time we have gone anywhere together and Liz didn't want to leave Nayeli. It was actually pretty adorable as she cried when we were about leave. I went through some strange emotions when I first went back to work but managed to coral them on my second night. It was nice to have a couple hours together and a nice meal away from home, but we rushed home as soon as we were done because we missed Nayeli.

Again, we pray you all have a glorious and healthy new year! We thank everyone who continues to follow Nayeli and our family. It means a lot to us and the kind words are always encouraging.
Nayeli enjoying her bouncy seat

Liz and Shane on their lunch date

Grandma (Nana)Victoria and Grandpa Telly