Tuesday, October 28, 2008

I AM THE BOSS!

The night before last night, the social worker allowed us to stay in a waiting room about 20 feet away from the area our daughter is. The social worker told us this room is rarily used for sleeping and we needed to vacate the room by 0900 am. Yesterday afternoon, I went and talked to the social worker and begged her to let us stay in the room at least the rest of the afternoon because we had a pretty sleepless night (last night). The social worker allowed this but didnt prefer us to sleep in the room overnight. We did it anyhow, but woke up really early and I cleared everything out of the room so it looked like we just showed up early and didnt sleep there. We are having a hard time leaving the hospital. It will get better for us in time.

So, this morning, we woke up and went to visit our daughter after I put everything in the car. When we walked in the room, the nurse asked us if we noticed anything unusual about our daughter. Liz immediately noticed the vent was off of Nayeli and she started to cry. The nurse told us our baby girl had pulled her breathing tube out a while before we came in. As mentioned in a recent post, we were trying to keep her hands away from the breathing tube because she kept touching it. Nayeli is indeed boss and the boss said she was sick of being on a ventilator. Initially, we were both scared and asked if she was going to be intubated again. The nurse said the Dr was aware of what had happened sand said she was doing just fine without it. So, at this point, they have decided to leave the vent off to see how she does. We were so happy we both started to cry. It was also awesome because we finally got to see her cute little mouth and chin. They still have a breathing device on her nose giving her some nice rich oxygen, but she is now breathing on her own! We thank God for this blessing and ask him to make it be forever.

So, after this discussion, the Nurse said, "Would you like to hold her?" I looked at Liz and told her to go first as she obviously earned this right! I am so thankful for my warrior queen and princess, they are amazing girls. Before we could hold her, several Dr's came in and said we would need to step out for a bit so they could do xrays and an echocardiogram to see how Nayeli was truly responding to being off of the vent. We were dissapointed, but I did take a quick video of her off of the vent.

We finally left the hospital and went to a place Alex Hidas arranged for us. We are so thankful this opportunity presented itself. I went there to meet Alex's "brother's mother" (who owns the home) last night. I hugged her and cried when she told me, "I know your situation, years ago when I came to this country someone helped me and now I am going to help you."

In closing, it took us a while to update this because we have been taking turns holding our daughter all day. What an amazing feeling. I cried when I watched Liz hold her, and she cried when I did. Very emotional day for us. We are so thankful....God is really watching over us and our daughter. We will continue to pray that things continue on the path of recovery for our baby girl. We are so thankful as the only person that can give us these gifts and the miracle of our little girl is God.
video


24 comments:

Daria said...

You are crying and we are crying along with you. How wonderful to get to hold her - that is huge. xoxo

Paula said...

INCREDIBLE! Way to kick CDH's behind Nayeli. Parents, it is so wonderful to see Nayeli where she belongs...in your arms!

Paula (mom to Wyatt, 11 months, LCDH)

Owain's mommy said...

Liz and Shane

Reading this brought tears of joy to my eyes! Nayeli is a true warrior princess and she is one heck of a fighter! I am so proud of your little girl.She really showed who the boss is and kicked CDH booty!

I am so thrilled that finally Nayeli was able to be in the comforts of her mommy and daddy's arms. What a day! What a blessing!

Amber

Jenna said...

We are so happy to hear how wonderful she is doing! Keep it up Nayeli!

PIC said...

Your daughter is BEAUTIFUL !! keeping my fingers crossed for your family........with love, PIC

SWilson said...

Oh my gosh, Shane! Nayeli looks absolutely content in her daddy's arms! Such a look of peace! God is truly with you guys! When you refer to Liz and Nayeli as your warrior queen and princess... you do not understate the case! What a praise report!!! God is good!

Elizabeth said...

These babies are the boss and we must listen to them - they lead this "dance".

This is awesome! I have tears of joy for all three of you! Enjoy!

With thoughts, prayers & Lung Function chants,
Elizabeth

SWilson said...

Nayeli really is the most amazing baby! I am so excited right now. Your family photo is just beautiful!

Alex & Ingrid Houchin said...

Oh guys,

It's so emotional to read your last posting. We are so happy for you! What an incredible little girl you have! Way to go Nayeli!

Hugs,
Ingrid, Alex & Alina

Terri said...

Liz and Shane YEAH! Hip, Hip Hoorah! This is so exciting. I think that Nayeli heard that Ava got off the vent okay so she said, "Well I can too!" That just gives me tears of pure JOY! I know how it feels ans rejoice in your blessings!!! God is so good!

I just can't stop smiling! Oh this is excellent. Keep telling her wonderful of a job she is doing. Make that sweet little girl with so much hair get a big head. She knows she is Princess Nayeli!

We sooo want to hug you both. She is still heavy on our hearts and deep in our prayers.

~Terri and Brian

Gail said...

Dear Shane and :iz..that baby of yours is truly a miracle. I didn't get to hold Michael till 3 weeks after the surgery, when they finally removed his chest tubes, etc..and breathing on her own? What a blessing...always say prayers of thanks as well as prayers for her speedy recovery..I do!!! I am so happy for you, I have been watching the updates and are getting more and more excited with each one. I was able to bring my son home in time for Thanksgiving and it looks like Nayeli may go the same route. What a wonderful and joyous Thanksgiving celebration that would be. And what a great way for Alex's family to "pay it forward" with the house. I know when the need arises, you will be able to do the same for someone else because of your blessings. Love to all..keep going Nayeli!! Love, Gail

Maxton's Parents said...

I am sooo excited for you all. I know that it has to be hard to wait to hold her and I am sure it was amazing. I will continue to pray that everything goes well.

Tracy Meats said...

Crying with you--you both look like proud parents!! How wonderful to get to hold Nayeli for the first time. Many prayers that she gets to stay off the vent and continues to do so well!! So happy for you Liz and Shane. Nayeli, you are doing great!!

Tracy Meats - mom to Ian(born with a LCDH 4/3/04) and WY and CO State Rep. for CHERUBS

Anonymous said...

Choked up and celebrating with you! Beautiful, beautiful, beautiful! Thrilled! Love, Amy

Tricia said...

I'm SO happy for you! Awesome, awesome! Does this meant they'll try oral feeds soon?

Anonymous said...

what great news!!!! so happy to hear she is off the vent! what a huge "step"! paying forward works! what a great thing! prayers for all of u guys!

Fer said...

OMG Thank God! Wonderful news!!!!!!!!!
Fer
CHERUBS Mexican rep.

Danielle said...

INCREDIBLE!! This is such great news. You both are such great parents. She is sooo CUTE! Her nice black hair (so much) and little mouth ahhh...i could eat her up. Reading this brought tears of joy to my eyes. She is strong like Bull. You go Nayeli!!

Deanna said...

That is wonderful news!! Seeing the 3 of you together is such a picture of JOY!! How fantastic to hold her and kiss her adorable lips! She is a vision of loveliness and you two are incredible parents!! Keep up the fight Nayeli, you're winning!!! Much love and prayers for all of you! Deanna, Joe & the girls

Anonymous said...

Shane and Liz- We are so happy for you guys!!! What wonderful news that Nayeli is off the vent and even more so, seeing you guys get to hold your precious baby girl! Thank God! It is great that you guys were offered a place to stay so that you could be close to your princess. God is full of miracles- let's keep them coming!

Jer & Jen Rocha

Cindy said...

YAY! I'm so excited for y'all. Way to go, Nayeli!

kathy said...

Liz and Shane,
She is so beautiful! I am so happy for you. It must have been a wonderful feeling to hold her for the first time. God truley has blessed your family! She will be home in no time!
In my thoughts and prayers
Kathy

Pamela said...

So cool!! So happy for you all. We will keep up the prayers!

Kaden and Angel Ava's mommy said...

YAY!!! The first thing I noticed when I logged onto your blog was the pictures in the post after this one and saw that Nayeli was off the vent. I have happy tears for you guys. I am so, so, so excited for you all. The videos look like she is breathing well. I can't get over how happy I am for you guys. I think she looks very comfortable and happy in your arms. Continuing to keep you all in my thoughts and prayers.

Amy