Monday, October 27, 2008
Our Little Princess
Last night they did the ultrasound on my leg and the Dr. said there was no blod clot. Shane and I were so relieved to hear this. We were anxious to see Nayeli so we took my parents with us. She was moving around and looked comfortable. They took the IV out of the side of her head and tried to put it on the other side of her head. It didn't work so now she has two little bald spots on the front of her forehead. I put a turqouise bow on her head for a minute to take a picture. She looked adorable with her little bow. She is so beautiful. Our little Princess. The nurse told me I could leave the bow on but I decided not to, I dont want it to bother her. The turqouise ribbon is symbolic of the Offical CDH awareness day, which is on March 31st every year.
We asked the Dr. lots of questions about the fluid. The Dr. said they would take another x-ray in the morning since she is doing fine right now. I asked why we should wait until tommorow because I am concerned she has more fluid now. The Dr. said it would show on her stats and she would make her boo boo face if she was uncomfortable. The Dr said they are relying on our daughters actions to tell them what to do. The Dr. said they would take another xray first thing in the morning.
About 7am, the Dr came in to talk with us about Nayeli. I aksed the Dr. if they had taken an xray of her yet and she said no. The Dr. said they would soon. It is now 7am and still no xray. I am getting impatient. This is hard for us to sit back and not know what is going on with the fluid. They did tell us not to worry. That is extremely hard to do.
At 0900 everyday, the Dr's have meetings and discuss each baby. Perhaps a weird coincidence, but right when we walked into the NICU, they were talking about our daughter. The Dr's said our daughter is stable and doing well. They said she is still taking morphine as needed through an IV line, which is given by the nurse when Nayeli tells her she isnt feeling good. The Dr's said they did an x-ray this morning and there is still a small amount of fluid in Nayeli's chest. They said they are still not concerned about this fluid and will continue to monitor it. They said if it builds up again and presses on her heart and lungs, they will drain her again. Based on this, we assume the lab results have not come back. They said the x-ray did not show a substantial increase in fluid build up and it looked the same. The Dr said they expect this fluid build up after any type of surgery. They explained that there is a small space in Nayeli's chest after the surgery due to the digestive things being moved down. The Dr said that when there is a space such as this, the body feels the void and will fill it with fluid.
Dr's said they plan to slowly wean Nayeli's assisted oxygen with the ultimate goal of getting her off of the oxygen machine.
The Dr said they will also start feeding Nayeli small amounts of my pumped breast milk. The Dr said they are going to start by giving Nayeli a tablespoon of mommy's milk to see how she responds to it. Dr's also said they plan to give our daughter a PIK line. A PIK line is a more permanent IV so they dont have to keep poking at our baby girl on a daily basis to give her needed meds and nutrients, etc.
Lastly, the Dr informed us that Nayeli is peeing regularly, and has now taken several poops. The Dr said this is good news because it shows that her body is functioning properly.
We will keep you all posted as stuff comes up. We thank God for giving us good news today. We pray that he will continue to help Nayeli get stronger and continue to fight. Keep those prayers and support coming. We love you all for this.