Today, one of UCSF's surgeons came and spoke with us about Nayeli. She said Nayeli is very stable and doing a lot better than they anticpated based on the charts they looked at before she was born. Based on the fact Nayeli is doing really well, the staff has decided to perform her CDH repair surgery tomorrow around 1 or 2 pm. The surgeon said Dr. Farmer is going to perform the surgery. This makes us very happy as Dr. Farmer is very reknown in this field and has done many of these surgeries.
If you haven't prayed for us yet, now is truly the time to do so. The first three days after Nayeli's surgery will be critical and could be a roller coaster ride for us.
Thanks for all of your kind words and support. It is very appreciated. We read your comments daily and it gives us the strenght to go on!
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30 comments:
Hi,
I found your site through Ava's. My son was born with LCDH last october. We are praying for your precious baby girl, and that the surgery goes well.
Congratulations!
Katherine, Dave and Benjamin
She is precious, congratulations and many prayers and blessings your way.
Stay strong,
Pena Family
Ana and Marco
WOW!! What a superstar you are Nayeli. You are doing so well. Keep it up sweetie and we will be praying for you for your surgery and the days to come.
Kristy, mum to angel SKYLA LCDH
http://skylacdhbaby.blogspot.com
Good news that she's well enough for the surgery. I have my prayer chain praying - for God to guide the doctors and give Nayeli the strength to heal quickly! XOXO
Wow!! My daughter will be induced on October 27 She is having a boy,He has cdh and everything but his liver are up. just wanted to let you know that we will be praying for you all. you can she her baby on carepages.com search for kaydenjameslee
Sincerly Carole
I heard about your story from our friends Jon and Amy Leonard. Your daughter is beautiful and so are you two. I read your comments 2 to three times a day to get the latest update. Nayeli is a strong little girl and she is going to be just fine. She has two wonderful parents to thank for that.
Much Love, Jeff, Tami, Bryce and Cole
That is so wonderful!!! I will be praying very hard for Nayeli's surgery to go well!
-Megan
mommy to John Michael
She is beautiful (even with all the tubes)!!! What a champ!!! You all continue to be in my thoughts and prayers.
Amy
Liz and Shane, I will be saying many prayers for all 3 of you. I have been thinking about all of you every day ...all day! I know this will be a rough few days but know that God is right there with you and will give you all strength and courage to get through this. You both have been so strong for Nayeli and that strength has been passed on to her. Thank you for keeping all of us updated and I can't wait until you get to bring your baby girl home.
Hugs & Kisses..and TONS of Prayers!
Gina
Oh my gosh she is beautiful! You are at the top of the prayer circle!
Liz and Shane--that is awesome news that she is going to have her surgery soon!! She is a strong little girl and we are praying she remains stable until surgery. Prayers that she remains strong after surgery and will soon be on the road to an easy recovery. Stay strong and continue to believe in those miracles!!
Tracy Meats, mom to Ian born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS
We'll be praying for Nayeli to get through surgery easily and stay strong in the coming days for a quick recovery.
The Millers
Congratulations! She is beautiful!
Our thoughts and prayers are continuously with you!
Love,
Jenna & Will
What a beautiful little girl, she really looks great, and ready for the next fight. Thank you for sharing the pictures, they are really fun. Hope all of you can get some good sleep tonight, of course you are in our thoughts and prayers....
JIM & DEE
Hi Liz and Shane,
Love the pictures, especially the one with little Nayeli holding on to mom's hand. It really brought tears to our eyes. We are praying for you that surgery goes well, that she will be stabilised quickly afterwards and that you get to take your precious little girl home soon. Liz, do focus on your own recovery as well and Shane, try to get some rest, there won't be that much of it afterwards :0). You've both done brilliantly so far!
Hugs from the UK,
Ingrid, Alex & Alina
Hi Guys,
You are a beautiful family! I am so happy that you and that beautiful baby girl of yours is doing so well. I can only imagine the emotions you must be feeling. I am praying that she stays stable and taht surgery goes off without a hitch.
You are in my prayers
Kathy
Liz and Shane,
We will be praying for Nayeli today. I hope that the surgery goes well and that she is able to recover quickly. I am so glad she is doing so well right now!
Rosie
Way to go Nayeli. You keep resting and getting stronger. I will pray for your surgery to go smoothly and for your recovery to be speedy so you can go home with mommy and daddy and let them start snuggling with you.
God Bless all the CDH babies.
Good luck guys...it sounds as though Nayeli is going into this very, very strong..so please try to be strong with her. Know that there are those of us out there who went through your ordeal and really, truly care and are praying very hard. She is one of the prettiest babies I have ever seen. Love to all, Gail
So far so good! Looking forward to the report that surgery went smoothly and all is well. Almost there! Many prayers for you and your beautiful family. Wish we were there.
Love, Amy & Jon & Family
I am praying! Thank you for posting these beautiful pictures! I am so happy Nayeli is doing well! I can't wait to meet her face to face!
God is truly great! I am looking forward to the good news!
lots of prayers for you guys today!! praying that all goes well!! thank you for sharing the pic's! she is beautiful!
Surgery already! That is fantastic! :) I'm so happy that she is doing so amazingly well! What a little trooper you've got there! And YAY for no pulmonary hypertension! I will be praying and will post a request on my blog!
Nayeli, Liz & Shane,
You probably don't need me to say that I pray for the three of you daily as I am sure you can feel all the love and prayers everyone has been sending your way! The strength and courage that the three of you have is a true act of love and family. I love you all and Nayeli I can't wait to finally meet you!!
Bernie
Sending prayers Nayeli's way. She sounds like one strong little girl...must get that from her mom who stunned the nurses with her post surgery activities. Parents, surgery day is long, physically tiring and emotional...mom needs rest after to heal that post c-section body so you can care for Nayeli soon!
Paula (mom to Wyatt, 10 months, LCDH)
Congratulations on Nayeli's birth; she's beautiful! We are certainly keeping her, and you, in our prayers. Tell Darlene we're thinking of her, too!
Ginny & Mike Nelson (Amy Leonard's parents)
Surgery with the best...truely a blessing ~ Must be all the love and prayers everyone is sending your way! Know that we are there with you....holding our breath too to hear that all is well with Nayeli.
May her surgery be successful in everyway and that Nayeli is soon in your arms.
Much love, Harris
Continued prayers for all of you and we've posted a prayer request at CHERUBS as well.
I know you are way, way too busy right now but just FYI for a later date... I wanted to let you know that there is a new CDH blog ring for families affected by Congenital Diaphragmatic Hernia.
This is a service to all CDH families to help us keep up with CDH blogs and to support and encourage families that need it. You can view it on our blogger blog at http://cdhsupport.blogspot.com/
As you can see, it does not list CHERUBS or any CDH group and it is free to join. You can click on Previous and Next and surf from CDH blog to CDH blog.
You can add it to any blog - myspace, blogger, wordpress, live, etc. Make sure to add your CHERUBS site blog to this as well!
To join, go here: http://www.ringsworld.com/cdhblogsring/join.html
I hope you have a wonderful weekend!
Dawn
President & Founder, CHERUBS
mom of Shane (1/28/93-9/11/99), LCDH x6, vent 1.5 yrs, oxygen 2 yrs, trach 2 yrs, Mic-Key feeding button, deaf 6 yrs, sight impaired, ASD, pulmonary sequestration, hypospadius, recurrent pneumonia and blood infections, hospitalized off and on his entire life, lost to gastropleural fistula - loved matchbox cars, Sesame Street and books, walked, signed, was a happy little guy!
Continued prayers for all of you and we've posted a prayer request at CHERUBS as well.
I know you are way, way too busy right now but just FYI for a later date... I wanted to let you know that there is a new CDH blog ring for families affected by Congenital Diaphragmatic Hernia.
This is a service to all CDH families to help us keep up with CDH blogs and to support and encourage families that need it. You can view it on our blogger blog at http://cdhsupport.blogspot.com/
As you can see, it does not list CHERUBS or any CDH group and it is free to join. You can click on Previous and Next and surf from CDH blog to CDH blog.
You can add it to any blog - myspace, blogger, wordpress, live, etc. Make sure to add your CHERUBS site blog to this as well!
To join, go here: http://www.ringsworld.com/cdhblogsring/join.html
I hope you have a wonderful weekend!
Dawn
President & Founder, CHERUBS
mom of Shane (1/28/93-9/11/99), LCDH x6, vent 1.5 yrs, oxygen 2 yrs, trach 2 yrs, Mic-Key feeding button, deaf 6 yrs, sight impaired, ASD, pulmonary sequestration, hypospadius, recurrent pneumonia and blood infections, hospitalized off and on his entire life, lost to gastropleural fistula - loved matchbox cars, Sesame Street and books, walked, signed, was a happy little guy!
Liz and Shane,
Claudia and I pray for the success and the fast healing
of today's surgery.
Rita
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