Tuesday, July 8, 2008
We went to our appt. today. It was a long exhuasting day. We were there from 9am til 5pm. We had an echocardiogram at 9am, an ultrasound at 10:45am The ultrasound took over two hours. They told us to come back at 2pm. We met with the Dr. and he said he met with the staff of 30, other Doctors and nurses and they discussed our case. We had so many questions but first the Dr. had to talk to us about the tests results. The echocardiogram showed the heart to be strong. We were thankful and wanted to hear more good news. The ultrasound didn't show any other problems. We were both happy to hear that too. The Dr. told us that Nayeli had a moderate severe case of CDH. Her stomach, intestines, and part of her liver are up. He told us that her survival rate would be 40%-50%. Nayeli's LHR (lung to head to ratio) is 1.0-1.1 He answered all of the questions. We met with their Social Worker. She took us to NICU. They had two other CDH babies in NICU. Shane and I both were trying to be strong as we walked by the babies and the visiting moms, we cried. It was hard not to. We are still trying to soak all of this day in. I have my Dr. appt with my regular OB next week and he is going to go over everything from today. We pray each day that Nayeli's lungs continue to grow and be strong.