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Born October 22, 2008 at UCSF weighing 6 lbs 15 ounces and 21 inches long
Nayeli was diagnosed with severe Left Congential Diaphragmatic Hernia (LCDH) during her 18 week ultrasound, on June 4, 2008. We created this blog to keep family and friends updated, and to raise overall awareness of CDH. During my pregnancy I always read this verse Psalm 121:1-2 I lift up my eyes to the hills where does my help come from? My help comes from the LORD, the Maker of heaven and earth.
Nayeli Faith
Born October 22, 2008 at UCSF weighing 6 lbs 15 ounces and 21 inches long
ABOUT US
- Liz and Shane
- Bay Area, CA, United States
- Shane and I got married on May 27, 2006. We live in SF Bay in California. Shane is a Police Officer and I am an Animal Control Officer for the same Police Department. We have two dogs Twinkie(chihuahua mix) and Molly (dachshund) and a tabby cat named Max. We found out our baby girl Nayeli was diagnosed with LCDH on June 4, 2008. We were expecting Nayeli on November 2nd. Nayeli was born October 22,2008. We have had great support from other CDH families and through other CDH links below.
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BLOG ARCHIVE
- June 2008 (4)
- July 2008 (3)
- August 2008 (4)
- September 2008 (14)
- October 2008 (35)
- November 2008 (20)
- December 2008 (7)
- January 2009 (6)
- February 2009 (10)
- March 2009 (7)
- April 2009 (7)
- May 2009 (10)
- June 2009 (7)
- July 2009 (7)
- August 2009 (12)
- September 2009 (7)
- October 2009 (10)
- November 2009 (8)
- December 2009 (6)
- January 2010 (5)
- February 2010 (6)
- March 2010 (3)
- April 2010 (2)
- May 2010 (1)
- June 2010 (2)
- July 2010 (3)
- August 2010 (1)
- September 2010 (2)
- October 2010 (2)
- November 2010 (1)
- December 2010 (1)
- January 2011 (1)
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- May 2011 (2)
- August 2011 (1)
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- October 2011 (1)
- November 2011 (1)
- July 2012 (1)
- February 2013 (1)
- April 2013 (2)
- August 2013 (1)
- September 2013 (1)
- December 2013 (2)
OTHER CDH BABIES
- Lauren (08/30/1991)
- Baby Alina (12/20/08)
- Baby Andrew B.(02/24/08-02/25/08)
- Baby Andrew H.(10/01/09-10/30/09)
- Baby Austin Josiah (03/24/10- 03/26/10)
- Ava (08/31/06)
- Baby Ava (04/13/09-04/13/09)
- Baby Averi Hope (11/30/09-12/28/09)
- Baby Avery (05/12/09-07/14/09)
- Blair (01/14/07)
- Baby Bodee(11/08)
- Briana (12/02/09-12/20/09)
- Baby Brooke and Kamryn (06/17/09)
- Cadenne (12/06/07)
- Baby Camden James (01/22/09)
- Baby Carter (10/07/08)
- Baby Ceceilia (11/02/99-12/10/99)
- Baby Charlie (02/04/09)
- Claire (06/07/07)
- Baby Colin (04/02/09)
- Baby Davis (01/30/09)
- Ella (07/24/07)
- Baby Elli (08/19/08-09/08/08)
- Baby Faith (03/06/08-04/05/08)
- Baby Gabriel (11/18/06-01/18/07)
- Baby Gabriel (03/02/08)
- Imogen (04/09/05)
- Baby Ireland Rose (08/19/09 - 08/30/09)
- Jack (08/20/07)
- Baby Jackson (07/29/09-08/08/09)
- Jackson (03/05/06)
- Baby Jaime (04/16/09)
- Baby James (06/09/09)
- Baby Jaxson (5/19/09)
- John (June 2003)
- Baby Joseph (02/03/09 - 02/26/09)
- Baby Juan Pablo (06/01/07)
- Baby Kayden (10/27/08)
- Kaden(08/12/04)
- Baby Kaden Alex (04/03/09 - 04/20/09)
- Kaden (07/25/07)
- Baby Kaden (08/18/08-09/16/08)
- Baby Katie (04/10/09)
- Kayla Mae (03/04/09)
- Baby Kinley (05/25/08)
- Kylie (02/04)
- Leah (08/11/05)
- Baby Lewis Anthony(10/31/09-11/1109)
- Baby Lewis Nathan Richard Boyd(11/12/09)
- Baby Liviana (01/18/08)
- Makena (09/30/06)
- Marco (03/02/07)
- Mason (05/25/07)
- Baby Maximus (08/10/09)
- Baby Maxton (03/03/09-03/21/09
- Baby Ned (01/21/08)
- Noah B. (06/07/07)
- Noah (09/20/06)
- Baby Oakley Elissa Mae (02/12/09)
- Baby Olivia and Mason (11/21/08)
- Baby Owain (01/25/08)
- Owen (03/06/07)
- Par (11/01/07)
- Baby Parker (05/06/06-05/08/06)
- Baby Rafa(07/14/09 - 08/17/09
- Baby Ryann (12/27/08-01/05/09)
- Baby Ruby Hope (04/10/09)
- Seth (04/20/07)
- Baby Sofia (03/10/08)
- Baby Skyla (10/13/07-06/13/08)
- Baby Sydney (11/05/08)
- Baby Vincent (09/16/09-10/02/09)
- Baby Virginia (02/17/09-03/11/08)
- Baby Weston (07/2007)
- Baby Wyatt (10/09/07)
CDH Allies CarePages. Register, click "visit care page". Then type baby's name as shown.
SF marathon for NFF 2013
CDH INFO AND LINKS
WHAT IS CONGENITAL DIAPHRAGMATIC HERNIA?
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
5
7 comments:
Hey Guys
Thanks alot I was wondering what she was - wow she is gonna be a tall one!
Love
Stac
Hey Guys,
She is going to be tall and thats a nice healthy weight! She is beautiful with a full head of hair and big brown eyes. Ahh, what a fighter!! She sounds like she is doing very well. She is so lucky to have such great parents. Take care of yourself and stay strong!
xoxo Danielle
Shane and Liz
Congratulations on your beautiful brown eyed girl. Our thoughts and good wishes are with you and Nayeli
Love
Dan and Anna
thank you! You must've been reading my mind! I was just saying that she looked to be a healthy weight and length... but you never said :-)
She's beautiful!
I am so happy to read up on Nayeli! What a blessing she is! She is such a fighter. We are keeping you all in our thoughts and prayers. Be sure to rest up, because Nayeli isn't going to slow down!
Take care,
amy
Liz,
I've been checking in on you all several times a day, but I haven't gotten a chance to tell you how excited I am about her progress. She is doing great and I know ya'll must just be walking on that mountain top to see how God is delivering her from all of this. I know you're so afraid to allow yourselves to think that the worst is behind you, but one day soon, the doctors will tell you that it is okay to believe it. The weight of the world will be lifted and you can really start to reflect on and absorb all the blessings of the situation that has kept you in a frightful place for so long. She's gorgeous and I'm so happy for the three of you. I'll keep checking in and praying (including Liz's rest on the prayer list).
Liz and Shane,
She is a beautiful girl! I am so happy that she is doing well. I can't wait for you to bring her home and I can see her face to face. She totally has Liz's eyes. I hope you are getting good rest Liz...you need to be strong for her so make sure you are taking care of yourself and getting lots of rest.
Love
Gina
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