This morning when were visiting Nayeli the nurse told us Nayeli is getting 10mcg of morphine instead of 15mcg and they took her off of Pavilon which makes her not move or open her eyes. We saw Nayeli open her beautiful brown eyes today and she wiggled her hands, feet and toes. We even saw her make a boo boo face (as Shane calls it). The nurse showed us how to take her temp, and put ointment on her dry feet, chest and lips. I was so excited to do it that I forgot about my surgery discomfort. Nayeli opened her beautiful brown eyes for us a couple of times. It was the most precious moment for us. We are so happy to see her take these steps forward. We continue to pray that our baby girl continues to fight this battle against CDH.
Mommy and Daddy with me after a good nights rest.
Mommy giving me a massage with ointment for my dry skin
Daddy and I have matching piano toes
Stop messing with my hair!
Mommy....Daddy....What are they doing to me?
Yesterday, I met with the hospital social worker Stephanie. She introduced me to a fire fighter and his wife, who were from out of state and were here for a check up on thier son. Their son is now 6 months old and had a pretty severe case of RCDH. He was still on oxygen which simply keeps his C02 levels high, and he is doing wonderfully. I was happy to see a baby that successfully fought CDH. I shared it with Liz and she was happy to hear the news.
18 comments:
Liz, Nayeli is so beautiful and she looks fantastic. Who would have thought she just had life saving surgery. Keep it up Nayeli, the way you are going, you will be home with mummy and daddy before you know it. Oh i was just wondering what was her birth weight. I dont think you wrote it down.
Kristy, mum to angel SKYLA LCDH
http://skylacdhbaby.blogspot.com
Shane and Liz
OMG she is absolutely gergous!
I am so glad to hear she is doing so well and you finally got some rest! Stay strong, all your family in Buffalo has you all in our thoughts and prayers!
Love
Stac and Jimmy
By the way she looks so BIG in the pictures, what was her weight and height??
Stac
She looks sooo good and beautiful. I can't believe she just had surgery. That's wonderful that you get to do some caretaking things for her so you can bond and soak her all in. She is such a fighter surrounded by loads of love. I pumped for Quinn when he was in the NICU and I know that helped him get big and healthy and before I knew it he was home with me. I'm so glad to hear you are doing that, too. It's such a gift to her. Thanks for the updates! xoxo
AWWWW ... Big Brown Eyes ... like Momma ! Glad you were able to rest Liz! Congrats on the baby steps forward ... each hour, each day ... another blessing!
xoxo Robin
Shane and Liz..this is for Nayeli
Nayeli precious little gem
Your heart so sweet and pure
Life doesn't seem to be so fair
For all you must endure
God plucked you from His garden
So full of special things
And sent you down to earth to see
Two angels without wings
He called them both your parents
And their love for you is true
You'll never have two people
Who will love you like they do
So fight oh little precious dear
You've just begun to live
And know the parents you are with
Have so much love to give
God chose you for each other
And He never makes mistakes
I know you'll fight with all your might
He gave you what it takes
Bless you all and keep the faith. Love to all, Gail
She is adorable - brown eyes here too and all my children too!
She is doing really well!
With thoughts, prayers & lung function chants,
Elizabeth
What a beauty she is! Thank you so much for pics!
You all are in our thoughts every day.
Rita &Claudia
I just found your blog through another blog I have been visiting, and I read about your sweet Nayeli! She is beautiful!
I also have a daughter who will be turning two years old next month. She had a left CDH. Your daughter's CDH sounds almost identical to my daughter's!! My daughter Raelyn did very well after birth, and had her repair surgery at day two! They also found they same abdominal organs in her chest....her stomach, spleen, intestine, and colon herniated. She did not need a patch either! Like your daughter, they were able to stretch her diaphram closed! (We too were so thakful and blessed for this!) Our daughter is doing amazing today and is very healthy..and I wish the same for your daughter as well! I will be praying for your baby girl and for the strength of you and your family during this difficult period of ups and downs with Nayeli!
"Faith is to believe what you do not see; the reward of this faith is to see what you believe."
Amanda Turner
San Antonio, TX
http://www.caringbridge.org/visit/raelynturner
We are so happy for you guys! We're so glad that everything is going well and we'll pray that it continues to go awesome! She'll be another success story like my baby John Michael--she already is!
Sha-la-la-la-la-la-la-la-la-la-tee-dah! She's your brown-eyed girl!
-Megan :)
Carepages.com, JohnMichaelLarson
that's a lotta hair!
so glad to hear she is doing good. thats so funny you told us her weight,, i was wondering that yesterday! glad to hear you got somerest. keep strong for each other and your precious miracle! prayers for you all!
I love that song Megan!
Liz, I'm so glad you finally got some rest! Don't forget to take care of yourself so you can be strong for Nayeli.
I LOVED the photos, she's adorable!
Liz ad Shane,
Her eyes are gorgeous! She is a little baby doll! Well one thing that Ava and Nayeli have in common is their heigth and weight! They are going to be such great friends! So glad to hear you rested Liz. It does feel good. Keep the pumping up. It gets old but I found that it was the one thing I could do and control for my sweet new princess! Prayers for you both and your little princess.
~Ava say to tell Nayeli if she can do this she can too!
~Terri
I am so happy to hear that Nayeli is doing well. What a fighter!!! You all continue to be in my prayers. I hope the next few days go great and that you all will be home sooner then later!!! Thinking of you.
Amy
I hope you do not mind, but I am going to add you to my friends list.
She looks great!! I will remember all of you at church today.
Mike Pro
I love the pictures! Liz, you look well rested too! Your little girl is so cute and many continued prayers that she remains stable and continues to get stronger. Nayeli, stay strong little girl and hold on to your mommy and daddy's love for you!! You sure are kicking some CDH booty this week!! Liz, best wishes for an easy recovery and you are feeling lots better this week.
Hugs,
Tracy Meats - mom to Ian (born 4/3/04 with a LCDH) and WY and CO State Rep. for CHERUBS
Liz & SHANE,
Nayeli is just adorable....happy to hear of the great progress....GO NAYELI !!!!! We continue to send our good wishes and prayers along with everyone elses...
JIM & DEE
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