Dr. Mckenzie came into our room around 330pm and told us Nayeli's surgery went well. Nayeli didn't need a gortex patch for her repair surgery they stitched her up using some of her muscles. Dr. Mckenzie showed us pictures of her right and left lung and also where they stitched the repair hole. Nayeli had her stomach, intestines, colon and spleen up in her chest no liver. The Dr. said that in her utero ultrasounds it showed part of her liver was up but that wasn't the case. We were so happy to hear this. Shane and I held hands as we were listening to her give us all the news. We were soaking it in. Dr. Mckenzie the next 5 days are going to be like a roller coaster. Nayeli will have good days and bad days. I asked when would Nayeli be out of the danger zone. Dr. Mckenzie said after 5 days. We are praying for Nayeli to remain stable and have a good recovery from her surgery. As the Dr. left the room I wanted to scream and yell at the top of my lungs THANK YOU GOD! I don't have much of a voice from sleep deprivation so I did it anyway. I asked the nurse if I can get something to help me sleep. She said she would get the Dr. for me. I need sleep and I can't seem to be able to get any with all my emotions. I have never had a problem sleeping. I want to get my rest so I can be here for Nayeli. Shane went to grab our parents that were waiting in the waiting room brought them. Harris was also visiting and we shared the news with them.
This has been a good day and I am taking the good news and will continue to pray for my preicous Nayeli. We are so grateful for everyone who have been supporting us, through emails, phone calls, and on the blog. We couldn't do this without you. We love you all so much. It brings tears to my eyes reading all of your comments for us. We feel so loved by all of you and we appreciate you being here for us. Thank you to all and please keep praying for Nayeli. She is going to kick CDH booty, I just know it!!!
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24 comments:
What wonderful news. I am so happy for your family! I'll pray for stable days ahead for Nayeli and much needed rest for her mom and dad. Surgery is a big milestone and Nayeli made it through with flying colours!
Paula, mom to Wyatt, 10 months, LCDH
Oh yeah baby - phenomenal news!! We will continue to keep you in our prayers and hope for a smooth recovery for Nayeli. Hang in there and try to get some rest.
We love you,
Amy, Jon & family
Liz, Shane, and sweet Nayeli, we are thrilled to hear that your surgery went well. We know that the next few days will be tough but continue to hang in there. You never know it could be just what she needed to kick CDH butt off going in the right direction!!!
Warm Hugs to all three of you. Hang in there we are praying overtime for you all. God is near.
~Terri
You said it best "warrior princess Nayeli is going to kick CDH booty!"
That is wonderful news that she didn't need a patch! Woohoo!
I will be praying that Nayeli will continue to be stable and go along for the ride with out any major set backs.
After my son had his repair surgery at 18 days old. He was so sick they operated on him in the NICU and we were told the next five days with be very critical and he will get worse before he gets better.We listened to what the docs had to say but I new that he would prove them wrong and he did! He amazed all the docs he just kept getting better and five days later I was able to hold him for the first time. Three weeks after surgery we were able to bring him home!
I am only sharing these with you because he is prove that all CDH babies don't get worse before they get better. Once they are fixed some just get better. Nayeli seems like she is on the right road. I will continue to pray that she will be able to recover quickly and hopefully soon she will be cradled in he mommy and daddy's arms.
alway s in my thoughts and prayers
Amber
P.S Liz and Shane I know it's not easy having a baby in the NICU but as long as Nayeli is stable please try and get some rest. It is really important that you both take care of yourself so you can be their for Nayeli.
Great news!!! We pray for a fast recovery.
Rita and Claudia
Liz and Shane..I would scream Thank you God too......5 days will be nothing compared to the time you have waited to bring that precious baby into this world. She has taught people more about strength and courage in the short time that she has been here than most people will do if they are 100 years old. Great news about the repair and keep fighting Nayeli..you are one blessed little girl. Love to all, Gail
We thank God for watching over Nayeli, Elizabeth & Shane. We hope you all can get some good sleep tonite, you have all been through a lot the last few days
in our thoughts and prayers...
JIM & DEE
Oh, I'm so happy for you all! Stomach, intestines, colon and spleen are exactly what John Michael had up in his chest. That plus Nayeli crying when she was born are both great signs! I just know she's going to kick cdh booty, just like John Michael. He comes HOME tomorrow!! At 3 weeks of age, not even 3 weeks post-op! I'm sure Nayeli will have a good outcome, too!
-Megan Larson
Carepages.com, JohnMichaelLarson
God is watching over you sweet girl! Keep fighting. Mommy & Daddy get rest. This too shall pass...
I'm glad to here that everything is going well. I know the next few days could be tough but you hang in there and will keep you in our thoughts and prayers.
Brian Helmick (Avas dad)
That is wonderful news!! Were they able to do it thorascopically? Cadenne had the very same repair, with the flap of muscle stitched to the diaphragm. (They opened her up with the traditional abdominal incision, though.)
I'm so HAPPY to hear that she did so well. I really think she's going to be a little rock star and be home very soon!
Hooray Shane and Elizabeth! This baby is quite a fighter... Her pictures are beautiful. Sending our thoughts and prayers for strength and rest, for the three of you, over the next five days. We can see your network of support is amazing, which is great because good things happen with prayer :)
Thinking of you, Mike and Tera
What wonderful news! We are thrilled to bits and will continue to pray for little Nayeli's quick recovery! With parents like you two, she's got every chance to fight this out! All our thoughts are with you. Keep it up Nayeli, you are doing wonderful!
Hugs,
Ingrid, Alex & Alina
what GGREAT news!!!!!!! so happy to hear she is out of surgery! you two get some rest and take care of each other so you can be there for Nayeli. prayers continue for all 3 of you!
Great news Liz!!!!! I'm so happy to read that the surgery went well. My prayers are still with you.
Wonderful news! It sounds like she is a strong little girl. She is a beauty! Your parents look so happy to be there with you both.
I will say another rosary for Nayeli today for complete recovery. I don't pray all that much unless I know it is all in his hands and I really need to pray for something. We love you-God bless all of you-get some rest-hang in there sweeties!love, aunt paula
Fantastic news! How great is it, I just knew it! I am so happy for you! We will continue to pray you for you. I hope you get some sleep finally. Love Deb
That is fantastic news!!! Nayeli has such amazing strength! She got that from the two of you. You 3 are such strong people and we are so happy for you guys. We continue to pray all the time and we ask God that Nayeli has a speedy recovery. We could never imagine what you guys are going through but I do hope that you are able to get some sleep. You need to be rested for your little girl. We send lots of hugs and kisses your way!
Jen & Jer Rocha
GREAT NEWS ! Tom and I are very sorry that we have been out of the loop and only yesterday found out about this blog. What an amazingly beautiful girl you have ! She has such strength coming from you two and will weather this storm with no problems. Tom and I will keep the 3 of you in our prayers and thoughts. Kick CDH butt Nayeli !!
xoxox Robin & Tom
We are so happy to hear how well everything is going. Great news! Will and I were talking about Nayeli yesterday after his graduation with his family right around noon yesterday. All our prayers went right to her as she was in surgery.
Stay strong!
That is great news! We are praying for all of you! I hope you're able to rest and that Nayeli stays strong and heals quickly. She has incredibly strong parents, you are both amazing people!
Much love Deanna, Joe & the girls
Nayeli is such a fighter and with such a positive family I am sure she will do great. She is so precious! All 3 of you will be in my thoughts and prayers and I will send some peaceful rest for each of you your way.
Always~ Megan
What wonderful news!!!! Nayeli is indeed kicking CDH butt!! :)
So happy the surgery was successful!! Many prayers, Nayeli remains stable and continues to get stronger each day. Try to get some rest Liz and Shane, you need your strength to fight this CDH battle with her. Hugs to your beautiful family!!
Tracy Meats - mom to Ian(born with a LCDH on 4/3/04) and WY and CO State Rep. for CHERUBS
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