Thursday, October 23, 2008

Nayeli is stable



Yesterday after we went to see Nayeli's nurse Anna. She is very nice and told us the Dr. would come and talk to us in a while after he was done doing rounds. I was trying so hard to go to sleep so I can meet with the Dr. but I guess I was too stressed and excited over Nayeli and what the Dr. was going to tell us. I couldn't sleep. I had nurses and Dr's checking in on me as well, so it made it hard to sleep anyway. I guess I was trying too hard to rest. At around 2pm the Pediatric Surgeon came and talked with us for over an hour and told us that Nayeli is doing well. He is very happy how she is doing. They have her on the ventilator set for 20/3 and she is taking 56 breaths on her own. Her heart rate is at 135 and stable with no signs of pulmonary hypertension. The Dr. said that if Nayeli is doing this well in the next day or two they will do the repair surgery. The Dr. told us that things can change and we know and are prepared for that. The roller coaster ride is just beggining. The Dr. called it the honeymoon stage.

The breast feeding nurse came in around 3pm and showed us how to pump milk. Shane likes this because he gets to pump me for milk. We enjoy doing this together.

Our parents came in for a visit at 5pm. I ate dinner and finally fell asleep for 2 hours until the nurse and Dr. came back in to check in on me. We went to visit Nayeli for a couple of hours and I sang with my hoarsy voice and shane talked to her. Nayeli's nurse told us Nayeli was doing fine. I had to go back to the room for the Nurse to check me. I slept for 6 hours and feel better today. We are waiting to hear fron the Dr. and I am waiting to get the cathether remnoved along with my oxygen so I can go spend the day with Nayeli.

11 comments:

Anonymous said...

She is precious! Liz, I am so glad that you got some rest. You've got to keep your strength up. If you guys needs anything, please don't hesitate to give us a call.

Jen & Jer Rocha

Anonymous said...

Fantastic news! Nayeli is so beautiful and so is your love for each other - what a family you make! I hope & pray that the honeymoon period never ends! Love, Amy & family

proudmom said...

Liz and Shane
Your daughter is absolutely beautiful. I pray for her health to continue to be stable, and to improve. You make a beautiful family.
Nayeli, you are a strong little girl and you are already a superstar. Keep fighting tiny one.
All of you try and get some rest.
Congratulations.
God Bless all the CDH babies.

Danielle said...

She is beautiful and precious! She is going to have the strength like her mommy! She has your eyes Lizzy! What a family you all make -so special. I am here for you if you need anything. Take care of yourself and rest.
xoxox Danielle

Kathyb1960 said...

OH MY GOODNESS! What a precious little angel. And it's so good to hear that she is doing well right now! PRAISE GOD!

And I'm so glad that you got some sleep! That always helps!

Thank you for sharing her picture with us! God bless you all and you are in my prayers!

Kathy in West Texas

Rosie said...

Liz and Shane,

Congratulations!!! She is beautiful! I am so glad to hear she is doing well right now. You are all in our prayers!

Rosie

Tracy Meats said...

I love these two pictures!! Nayeli is precious and looks like she has good color to her. What great news she is stable and not showing signs of pulmonary hypertension. Prayers that she will continue to remain stable and have her repair surgery soon--she is one strong little girl. I am happy to hear that you got some rest--try to continue to rest, I know that is hard to do, but Nayeli needs you once you are discharged.

Congratulations on the birth of your precious little girl! Keep fighting Nayeli!!

Tracy Meats - mom to Ian(born 4/3/04 with a LCDH) and WY and CO State Rep. for CHERUBS

Daria said...

So wonderful to hear such good news...and that you are getting some sleep even through all those hormones and emotions. I remember the NICU well. It can be scary and overwhelming and it's hard to go back to your room and leave your baby. Fortunately, those nurses are such caring big hearts and she's in good hands.

If you need a happy distraction, check out these cute videos:

http://mfrost.typepad.com/cute_overload/2008/10/great-pit-bull.html

Thanks for keeping us all posted with pictures and updates. She's beautiful.

xoxo Daria

Hope for congenital diaphragmatic hernia said...

She is beautiful!!!!!

"Keep fighting Nayeli."

~Brian and Terri

casau said...

congrats!! glad to hear all is better than expected!1 prayers for all of you!

Fer said...

She's beautiful Liz! I'm glad she's doing well.
Fer
Mexican Rep. for Cherubs