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Born October 22, 2008 at UCSF weighing 6 lbs 15 ounces and 21 inches long
Nayeli was diagnosed with severe Left Congential Diaphragmatic Hernia (LCDH) during her 18 week ultrasound, on June 4, 2008. We created this blog to keep family and friends updated, and to raise overall awareness of CDH. During my pregnancy I always read this verse Psalm 121:1-2 I lift up my eyes to the hills where does my help come from? My help comes from the LORD, the Maker of heaven and earth.
Nayeli Faith
Born October 22, 2008 at UCSF weighing 6 lbs 15 ounces and 21 inches long
ABOUT US
- Liz and Shane
- Bay Area, CA, United States
- Shane and I got married on May 27, 2006. We live in SF Bay in California. Shane is a Police Officer and I am an Animal Control Officer for the same Police Department. We have two dogs Twinkie(chihuahua mix) and Molly (dachshund) and a tabby cat named Max. We found out our baby girl Nayeli was diagnosed with LCDH on June 4, 2008. We were expecting Nayeli on November 2nd. Nayeli was born October 22,2008. We have had great support from other CDH families and through other CDH links below.
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BLOG ARCHIVE
- June 2008 (4)
- July 2008 (3)
- August 2008 (4)
- September 2008 (14)
- October 2008 (35)
- November 2008 (20)
- December 2008 (7)
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- February 2009 (10)
- March 2009 (7)
- April 2009 (7)
- May 2009 (10)
- June 2009 (7)
- July 2009 (7)
- August 2009 (12)
- September 2009 (7)
- October 2009 (10)
- November 2009 (8)
- December 2009 (6)
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- July 2012 (1)
- February 2013 (1)
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- August 2013 (1)
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- December 2013 (2)
OTHER CDH BABIES
- Lauren (08/30/1991)
- Baby Alina (12/20/08)
- Baby Andrew B.(02/24/08-02/25/08)
- Baby Andrew H.(10/01/09-10/30/09)
- Baby Austin Josiah (03/24/10- 03/26/10)
- Ava (08/31/06)
- Baby Ava (04/13/09-04/13/09)
- Baby Averi Hope (11/30/09-12/28/09)
- Baby Avery (05/12/09-07/14/09)
- Blair (01/14/07)
- Baby Bodee(11/08)
- Briana (12/02/09-12/20/09)
- Baby Brooke and Kamryn (06/17/09)
- Cadenne (12/06/07)
- Baby Camden James (01/22/09)
- Baby Carter (10/07/08)
- Baby Ceceilia (11/02/99-12/10/99)
- Baby Charlie (02/04/09)
- Claire (06/07/07)
- Baby Colin (04/02/09)
- Baby Davis (01/30/09)
- Ella (07/24/07)
- Baby Elli (08/19/08-09/08/08)
- Baby Faith (03/06/08-04/05/08)
- Baby Gabriel (11/18/06-01/18/07)
- Baby Gabriel (03/02/08)
- Imogen (04/09/05)
- Baby Ireland Rose (08/19/09 - 08/30/09)
- Jack (08/20/07)
- Baby Jackson (07/29/09-08/08/09)
- Jackson (03/05/06)
- Baby Jaime (04/16/09)
- Baby James (06/09/09)
- Baby Jaxson (5/19/09)
- John (June 2003)
- Baby Joseph (02/03/09 - 02/26/09)
- Baby Juan Pablo (06/01/07)
- Baby Kayden (10/27/08)
- Kaden(08/12/04)
- Baby Kaden Alex (04/03/09 - 04/20/09)
- Kaden (07/25/07)
- Baby Kaden (08/18/08-09/16/08)
- Baby Katie (04/10/09)
- Kayla Mae (03/04/09)
- Baby Kinley (05/25/08)
- Kylie (02/04)
- Leah (08/11/05)
- Baby Lewis Anthony(10/31/09-11/1109)
- Baby Lewis Nathan Richard Boyd(11/12/09)
- Baby Liviana (01/18/08)
- Makena (09/30/06)
- Marco (03/02/07)
- Mason (05/25/07)
- Baby Maximus (08/10/09)
- Baby Maxton (03/03/09-03/21/09
- Baby Ned (01/21/08)
- Noah B. (06/07/07)
- Noah (09/20/06)
- Baby Oakley Elissa Mae (02/12/09)
- Baby Olivia and Mason (11/21/08)
- Baby Owain (01/25/08)
- Owen (03/06/07)
- Par (11/01/07)
- Baby Parker (05/06/06-05/08/06)
- Baby Rafa(07/14/09 - 08/17/09
- Baby Ryann (12/27/08-01/05/09)
- Baby Ruby Hope (04/10/09)
- Seth (04/20/07)
- Baby Sofia (03/10/08)
- Baby Skyla (10/13/07-06/13/08)
- Baby Sydney (11/05/08)
- Baby Vincent (09/16/09-10/02/09)
- Baby Virginia (02/17/09-03/11/08)
- Baby Weston (07/2007)
- Baby Wyatt (10/09/07)
CDH Allies CarePages. Register, click "visit care page". Then type baby's name as shown.
SF marathon for NFF 2013
CDH INFO AND LINKS
WHAT IS CONGENITAL DIAPHRAGMATIC HERNIA?
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
CDH occurs in every 1-2000 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
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7 comments:
She is absolutely beautiful and a miracle as well! You all look so good but she of course steals the show......
I love seeing the pics - thanks for keeping us posted
Your in our thoughts constantly
Love
Stacy & Jimmy
Hey Liz, Thanks for the email. I really appreciate you taking time out to send me a message. I am preparing for my inlaws to come over but will definately email you back. Nayeli is sooo beautiful. The 3 of you give me hope and are an inspiration.
Thinking of you
Ashley
Yes she is! She looks like she is doing well too!
Keeping you all in my thoughts, prayers and LUNG FUNCTION chants,
Elizabeth
Try not to get too worried guys..my son had chest tubes for the duration, which were not removed till the week before he came home. I know it is hard not to worry, but she is in an excellent place and the Drs and nurses are trained to do the things we can't. She will be fine and what you had typed before about her being weaned was amazing...remember, there will be ups and downs, you will all get through this..and someday it will all be a distant memory. Prayers continue and love to all...Gail
Nayeli is so beautiful!! Love the pictures and look at all that dark full head of hair!
Tracy Meats - WY and CO State Rep. for CHERUBS
Yes she is!
Such sweet pictures! Thanks for sharing :)
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