Friday, November 7, 2008
Look Mom and Dad, I'm totally breathing all by myself!
Nayeli gives life without the high flow nasal cannula a siskel and ebert big thumbs up!
We went to the DR's morning rounds meeting again. The DR's lowered Nayeli's oxygen input to 1%. Nayeli is now a one percenter....for those in the know. The DR's said to keep working on feeding and they beleive it will get better day by day. They still want to focus on getting Nayeli taking all of her feeds by breast or bottle. Nayeli is not there yet and still gets tired and frustrated while she eats. She is getting better, and has taken as much as 45 cc's or so between the two before having to be given the rest of her food via the feeding tube. Not much else has changed on this front and we hope Nayeli gets stronger each day and is able to eat more. Nayeli has a strange pattern going right now as she seems to sleep most of the day and is then restless at night. Most parents would complain about this, but we are just happy for every day we have with our baby girl. We are so lucky. Liz is doing a heck of a job having to wake up every three hours to feed our baby girl and keep up with her food intake. We thank God for her strength and commitment to this difficult task!
Late this morning, we were standing at our daughter's bedside wathing her sleep and make her cute facial expressions. She has such a cute personality. We noticed Nayeli's nasal cannula was completely out of her nose and her stats appeared to be the same. The DR came in and our nurse today told the DR there was really no need for Nayeli to have the cannula. Initially, the DR said to put it back in and wait one more day, but he then looked at her stats and said, "Never mind, go ahead and take it off." The staff left the equipment in the room ofcourse to make sure things go smoothly, but they do not anticpate putting it on.
All that's left now is the feeding tube and Nayeli is already working on taking it out herself. We just went in there to check on her and she had a handful of the feeding tube in her hand. We took the tube out her hand and told her to be patient because it will gone soon enough with Gods blessing.
The blessings keep on coming. We can almost taste taking our daughter home, but realize we are not there yet. A new CDH baby arrived last night, and there is another one in the room with our daughter. We remember those first few days and it feels like a year ago. We have come so far and thank God for our little miracle. We pray the blessings keep coming. We thank everyone for your continued prayers and support!
Nayeli usually falls asleep and farts when daddy burps her.
Mommy burps our little bundle of joy!