Sunday, November 9, 2008
Sweet Dreams of Going Home!
Nayeli has a strange sleep pattern right now. She is like daddy.....a night owl. The last few days, she has spent a greater part of the day sleeping. It seems like the hustle and bustle of shift change between 7 and 7:30pm wakes her and she gets moody. We usually manage to calm her down before we leave in the evening, but nurses tell us she gets pretty moody at night.
We are still having some difficulty getting Nayeli to eat a full meal at each feed, at least by breast or bottle. She continues to get frustrated, her respiration rate goes up a bit and she then doses off. I think the best we have done is about 45 cc's combined between breast feeding and bottle feeding. The lactation nurse told us that once Nayeli starts to dose off or gets frustrated, we need to take her away from breast feeding because she will start to except this as her "comfort place." So, for now, the feed tube remains to finish off her feeds. Nayeli is still working at pulling it out. We are praying and hoping her stamina increases so she eats more and they are able to remove the feed tube. We suspect she will eventually go home on mostly bottle feeding, we just do not want to go home with the feed tube still in place.
Nayeli is also doing great breathing room air on her own with no added oxygen. Looks like the DR's will leave this off unless something changes. DR's do not anticipate any changes at this point and took the machine away yesterday. There's now so much space around her bed. We pray Nayeli continues to improve her strength and breathing.
We were reading the bible the other day and found a passage that moved us and reminded us of the power of prayer and faith in God. As we have mentioned before, we believe there is no other explanation for God's miracle with our baby girl. All of your prayers, as well as our own, have no doubt helped our daughter's situation.
2 Corinthians, 1:10
On him, we have set our hope that he will continue to deliver us, as you help us by your prayers. Then many give thanks on our behalf for the gracious favor granted us in answer to the prayers of many!
We thank everyone for their continued prayers and support. It means a lot to us and we read every single one of your comments!
On a side note, if there is anyone out there who likes to cook, we are dying for a home cooked meal once in a while! We are burned out on cafeteria food and do not leave the hospital as we spend our precious time with our daughter. We only leave to go sleep for six hours. Alex Hidas and Amy Harris have graciously brought us out home cooking and we loved it. If you are interested, we can make arrangements. All our love, the Nelson family! A special thanks to Alex and Suzzanne, Harris, and Marge Jensen for the great food, we loved it!
Hi Grandpa Telly Check out my view! If you look closely you can see the Golden Gate Bridge