Monday, November 10, 2008
Movin on UP...closer to Movin out
Nayeli's new view!
You are not going to believe this, but we went to the DR's morning rounds again. We will do this until the day we leave...we will stay by our baby girls side and make sure she knows we are there supporting her.
The DR's have raised Nayeli's feeds to 70 cc's a feed and they have stopped giving her Lasics. They plan to do an x-ray in the next couple of days the see what the fluid level is. They are still thinking it is surgery related fluid and suspect it will be gone or close to gone on the next x-ray. We really hope this is the case.
Today, we noticed Nayeli had some yellowish fluid around her left eye. It does not seem to be bothering her, but as you all know, as parents, it is driving us nuts. The DR's looked at it and gave us several different answers about what it could be. One said it could be conjunctivitis, a viral infection that could be treated with an ointment on the eye. Another idea is it could be a clogged tear duct and will either right itself or we would have to see a specialist down the line. As of now, they are just cleaning her eye with water and monitoring it. We are a little confused by this and since it does not seem to be bothering her, we will wait to ask the DR's more about it tomorrow morning unless it gets worst tonight. Pray this is nothing and it goes away soon.
So, the DR's are leaning towards taking the feeding (NG) tube out sometime tomorrow. They believe she is starting to take in enough food and want to start "ad lib" feeding her...in otherwards, feeding her when she asks for it. This works great for us as we spend our day with her anyhow. It is very hard on Liz and the breast feeding is very tiring for her. Liz said she feels like Nayeli is sucking the life out of her. We know princess Nayeli has special powers, but we are not sure about this one.
Today, Nayeli was moved from the sick baby wing (west) to the transitional wing (north). This is a big step in the right direction for our baby girl. DR's told us they anticipate us leaving in about a week (or a bit more)! We are so blessed and happy about this news, but also pretty scared. We know this is natural, but we worry about her due to her physical issues that can arise with her known condition. The DR's also talked to us about limiting contact with people when she does go home, at least during the winter months when the flu is going around. They reminded us how dangerous it can be for her to get sick because her lungs are smaller than most babies. They said that as she gets older, her lungs, and obviously her, will get much stronger and this issue will not be such a big deal. We are already talking about installing the same type of hospital grade hand cleaner dispensers at our entryway, and on the hall outside Nayeli's room.
Back to Nayeli's new room though....it is so quiet in there. We are hoping this is the change she needs to start feeding better. We are thinking there were too many distractions and noise in the old ward.
Right when we were leaving, the DR's brought a new baby in. There were at least 15 DR's swarming around. When we came into the the hall, we saw the Father of the baby pacing. We looked at one another and remember this feeling of helplesness. We felt terrible for him and asked him if we could get him anything. He said no, but we brought him some ice water anyhow. Please pray for him, his baby, and his family for strength, courage, and the faith to overcome whatever is going on with his baby.
More to follow.