Saturday, November 15, 2008

Our Home Sweet HOME



Wow. What a journey so far. It is almost impossible to put our feelings into words. Again, we cant help but have the word "Miracle" in mind. Both of our emotions are flying so high, pulling up to our home.....Nayeli's home. When we got home, we carried Nayeli inside in her car seat. She was so precious and passed out at the moment.

So, before we get to all of this. We met with Nayeli's primary DR. He is a Kaiser DR but is doing a stint at UCSF. We want to extend our deepest, heartfelt thanks to the DR's, nurses, social workers, food workers, and every other staff member in that building that was a part of our daughter's and our life. What a first class great facility with unbelievable staff. Our heart tells us to thank individual people for individual efforts....and there were a lot of them....but we would be here forever doing that. Every person there played a roll in saving our daughter's life, comforting us, and even feeding us. THANK EVERY ONE OF YOU and may God bless you and your families.

Home with our baby girl. We are finally getting the feel of parents with a new born baby..a hungry....pooping....crying when she poops or is hungry new born. And guess what, we love it! We feel so fortunate and blessed to have each and every minute, hour, and day with Nayeli, so we take the late night wakes and crys with smiles and droopy eyes. She is so strong, aware, and interested in her surroundings. Twinkie, Molly and Max seem not to be too bothered by Nayeli. Well, at least Twinkie and Molly. Max runs when Nayeli screams and has recently taken to sleeping downstairs on whatever couch the dogs are not on. Get he is getting older and needs his beauty rest. So, we are adjusting to now actually getting to be parents of a child away from the NICU...the beeps, scampering DR's and Nurses, and wires and hoses. As a recent post said....our little "wireless" Nayeli.

From a "medical" standpoint, Nayeli is eating well and often. She is pooping and peeing like a "normal" baby also. With her CDH, comes the gas and ocassional vomiting. With this being said, we have to move Nayeli very minimally and slowly after she eats to prevent her from vomiting. So far, we have done fairly well with this task. Nayeli takes 4 different medications for her tummy, acid reflux, gas, and a vitamin enhancement. We also add a small scoop of Similac to each of her meals to further fortify Liz's breast milk to help Nayeli grow faster.

With all this being said, we want to thank everyone for the great home cooked meals, especially with us now being at home. We thank you all for your continued support and prayers. It means so much to us and reminds us of all the wonderful friends we have. We are a very lucky and blessed family based on everything mentioned in this blog. Please keep the support and prayers coming as we deal with gassy (due to her condition) baby Nayeli.

video

19 comments:

Stacy and Jimmy said...

Liz and Shane
So glad to see pictures at home and know Nayeli is doing so well and so are you both. In the last picture with you and Liz she has the most prescious face, like I want to smile but I am still not sure..... it is too cute.
Make sure you "try" amd rest and just enjoy every minute with her!
Love Stac and Jim

Alex & Ingrid Houchin said...

Hi Liz and Shane,

We've been looking forward to this post. It's great to see Nayeli at home without any tubes. We can only imagine the happiness you both are feeling. You are a very special family and we are sure that everything will be more than ok.
Our thoughts go out to you.
Hugs,
Ingrid, Alex & Alina

Fer said...

I¡m so glad Nayeli is finally home. This is one happy post!!!!!!!
Fer
CHERUBS Mexican Rep.

Amy Leonard said...

Welcome Home! We've been eagerly awaiting this post! Sounds like you are all doing fabulous, like any newborn family! So thankful and thrilled for you - keep uploading those photos and video. Love, Amy & Jon & Family

Anonymous said...

what a wonderful post! so glad to see her (and you guys) home and all together!!! prayers continue for alll of you guys!!

Tracy Meats said...

WELCOME HOME NAYELI!!! I have been looking forward to hearing how you 3 are doing!! It is great to see pics of Nayeli at home. I remember the feeling of getting to bring a child home from the NICU, nothing can compare to the joy and happiness. Many continued prayers for your little girl that she only thrives at home and keeps doing so well. Hugs to you Nayeli, Liz, and Shane--I am so happy for you and your family. GOD IS GREAT!!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Anonymous said...

Welcome Home!!! We are so glad that you guys are doing well and adjusting perfectly into parenthood at home. We continue to pray for you guys all the time and constantly check your blog to see new pics. If you need anything give us a call. We'll be more than happy to help you out. We love you all!
Jer, Jen & Anthony Rocha

Gina said...

I am so happy for all of you! You are such a beautiful family!!
All my Love,
Gina

Anonymous said...

What terrific news! I was thinking about you guys all weekend and how you would be quietly spending this special time together. Those first moments back at your home with your baby are truly indescribable. The movie of Nayeli watching her mobile is so precious and brought tears to my eyes, especially after Shane explained that the song was played at your wedding.

John also has the vitamins and scoop of formula to fortify my milk. It's so amazing the similar journeys these two little souls who live so far away from each other have taken.

We are sooo very happy for you and hope that you do all right with your gassy little one. Nik's gotten good at telling which of John's cries are his "gas cries" and something he found that helps is putting John at a slight incline on his back and then making his little legs do a bicycle motion. A good non-medicine intervention.

Hugs from Anchorage, where we have ice fog today! Yeah! Ice fog! :) Wave at the beach for me, okay?

-Megan, Nik, and baby John Michael

Terri said...

So So So happy you are all home! I loved the comment that Nayeli is "wireless" perfect!

Thanks for sharing her with us!

~Terri and Brian

Sonya Wilson said...

So happy for all 3 of you! What a blessing and a joy! Yes! This is a MIRACLE from God! What a beautiful testimony to tell Nayeli as she grows up. To hear how much she was loved before she was even born. And how God answered ALL your prayers for her before you even knew her! I know what you mean about enjoying even the work. 21 years later, I still feel the same about Curtis! I kept praying when the dr said don't be surprised if you don't get to have this baby.... that was not an option, I knew I had the power of prayer! Same with your Nayeli! There will never be a day that you do not look at her and realize how blessed you are! I see in your faces in the pictures!
God bless you!

Anonymous said...

It is so wonderful to see her at home. She is beautiful, and is truly blessed to have you both for her parents. Love and faith will continue to guide you through this wonderful journey, and remember, someday, .....you will get some sleep :)
Love to you all,
Jenn Ray

Daria said...

Welcome home!! It's such a beautiful sight to see, especially seeing your dogs in the pictures (too cute). I look forward to more updates as she thrives at home and will continue to send you all healthy wishes. xoxo

Kenny and Jennifer Miller said...

Welcome home Nayeli!! I'm so excited for you guys. The pictures are fantastic. She is such a sweetie!

Jen

szrhands said...

We know how busy the two of you are with your little bundle of joy. We all are happy to read and see how well Nayeli is doing. Happy for all of you to be home.....It is so amazing to watch how fast she changes...they grow so fast...enjoy each moment as it comes...
love from JIM & DEE

Tricia said...

I have tears of joy in my eyes! What a wonderful God! Nayeli is gorgeous and healthy and looks SOOO happy to be home! Keep the pictures and updates a' comin'!

Gail said...

Congrats you guys on finally being able to bring that sweet baby home. I will continue to keep you all in my prayers, you will see her getting stronger each day. She was kept on this earth for a reason and I know she will do great things with her life. She probably has already taught so many people so many lessons about love, prayer, life, miracles and not taking any one or anything for granted. Enjoy your moments with her...share her with your family and friends, let them see what a miracle she is and keep loving and supporting her. Love and prayers, gail

Pamela said...

How sweet it is!!! We continue to pray for Miss Nayeli and the two of you. Hope you are getting your naps in? Remember, when she sleeps you sleep :)

Elizabeth said...

Welcome Home all and especially Nayeli!

Keeping you all in my thoughts and prayers,
Elizabeth